I had pain in my back along my spine on and off for about 11 months after diagnosis. It often showed up when I had been pushing myself too hard or when I'd been out in really hot/cold/humid weather.

The pain was never severe (maybe 2-3 on a scale of 1-10) and easily controlled with Tylenol, but it was definitely pain that I only experienced post-clot and which I associated with clotting.

Definitely made me paranoid, but after I figured out it was just me pushing my lungs too hard, I had an easier time dealing with it. I usually spent a couple of days babying myself and it would go away after some rest. Even now (almost five years after diagnosis), I'll get little twinges here and there if I do something that really pushes myself.

Hard to say if you're dealing with the same thing, but if you had infarction, I could definitely see pain coming and going for a while, even well past the six months that most people are on anticoagulants. Does it get better with rest? That might be a sign that it's a healing pain and not something else to worry about. (You could also ask for a d-dimer before heading straight to a CT if you're worried about repeat clotting and you're not on thinners already.)

I also had an infarction. 4 months out, I still have discomfort , but it is improving. I mostly notice it when I take a deep breath in. I had terrible muscle spasms along with the infarct pain during my PE episode, so I feel that my pain/ discomfort may be a combination of the lung and muscle healing.

At a month out, I still had considerable discomfort, and it was definitely made worse when I over did things. It seems like like a good thing that your breathing is alright.

Hope you feel better soon

Yes, it sounds very familiar to me. My PE was in July 2013. I went off of Warfin this past July. I have pain in my back off and on(same location) as the PE. Like others have already mentioned the pain seems to come when I am overly tired or have worked really hard. Breathing is fine. I Had a d-dimmer test in August and it was very slightly elevated, the doctor and I agreed that I would quit the Warfrin. I know the symptoms and if I experience pain like before with breathing problems I will head to the ER.

Hope everything is okay.

I can certainly relate to the pain you have described. I am having that very pain. I have talked to my doctor about the pain and he can not understand why I am still having pain and passes it off as something other than the PE (I had 3/14). I am taking some strong meds just to function each day. I have had CT's and an MRI that show nothing that would be causing the pain. I will come off Xarelto on the 27th...I'm hoping that will make some difference.

I had no pain as the PE built up. Nor did I have any in the hospital. Immediately after discharge, I had pain that began in the lower back. It moved to some other spot each day, eventually becoming severe around the neck and shoulders. It was the only time I ever had pain that drove me to popping pain pills. Fortunately it ran its course in a week.

I have experienced pain in my back and my neck...I have no idea how much it relates to my PE's, but since I didn't have it before, I would assume it has something to do with them. I got a bad pain in my back and a band of pain around my chest that I thought was another PE, but my breathing was fine throughout as well as my pulse (which I checked a lot because my pulse went through the roof during my PE) and the pain stayed with me for about 24 hours and then went away.