Pulmonary Embolism Support Group

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

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More pain

bsmith4421
bsmith4421
Hey everyone. Haven't been on here in a while since I've been busy with work. Today I was working and it was a lot of twisting of my upper body and tonight, the spot where I had my pe over two years ago is sore. It aches if I move certain ways. Is this normal so far out? I'd say the pain is probably a 3 on a scale of 1-10. Nothing too bad but it's annoying and worrisome.
rytheguy71
rytheguy71
I wish I could give you some sort of answer, but I am in the exact same situation as you bismith4421. I actually have pretty much the same question. I haven't been on the site in a while busy with work and back to "normal" life. I have started back working out again, about 3 months now and today I noticed pain in my non DVT leg, inside of the calf. Feels bruised to the touch, but doesn't seem to be swollen. Don't remember hitting it or anything. Very specific spot on the calf.

I guess my real question here is at what point do you think I should go get it checked out? I know my doctor would want to do an ultrasound. Seems like they could take a d dimer first and then only do the US if d dimer positive.
bsmith4421
bsmith4421
I got my inr checked and it was actually high so I'm assuming it was just aggravated. I've had it a few more times with a high inr. My legs hurt sometimes but usually it goes away. If it didn't go away after a day or two, I'd probably see the doctor.
echo86
echo86
I had my first PE in May 2014 and my left lung was the most affected (extended embolized area, infarction and pleural effusion).

In the first months the pain was unbearable, then it gradually subsided but it is always there. Nowadays it is more a dull chronic ache than a pain and I got fairly used to it.
I do everything I did before the PE, including running, heavy workouts and screaming at concerts (well, this is all a bit on hold at the moment due to a second PE this November, but I am sure I'll get back to it again!).
Sometimes, when I overexert/make weird body movements/stand in the cold weather, the pain gets a bit more intense but I get it under control with some painkillers.

This is all to say that pain can be there even after almost two years, bsmith4421. However, if you have never experienced it in your recovery in the last two years and it really concerns you, go see your doc.

Good luck!