In some ways, this is similar with me. Never had a headache/migrane until I got ill about a year before the PEs were diagnosed and I had them fairly constantly during that year. Just before diagnosis, I'd get really light headed/bad headaches whenever I tried to do minimal exercise. As soon as I started taking the anti coags, the headaches were significantly reduced/went away. Don't really know why but I suspect it was due to the clots blocking blood flow to the brain.

I think other folks have reported similar findings. If you run a search on past posts for "migraine" you might turn up some of the other discussions about this.

My head has never felt better since I started taking blood thinners. I've only had one headache in 9 months, which was probably stress from flying.

This actually makes sense to me. I get ocular migraines, which is actually due to limited blood flow. I don't know that's necessarily the case with normal migraines, but I think that if you've noticed that marked a change, it would be worth continuing to talk to your doctors about it. Perhaps there could be a connection to better blood flow and your migraines ending.

Rosiethecat, it's interesting how similar your story sounds to mine, including the headaches being worse in the year before. Hmm. We're you diagnosed with a certain clotting disorder? Wondering if the migraine thing really is related to APS (like I read in the Hughes Syndrome web site) or if it's related to "stickier" blood in general. It does make sense if the latter is the case. It looks like several of you had a similar experience.

I did a search here for migraine, but all I really came up with were people who talked about getting headaches from their meds, rather than headaches going away.

In the year prior to getting diagnosed, the headaches happened along with muscle pains, sleeping problems (which I just don't do :-)), heart flutters, fatigue ... There was never a good diagnosis of this stuff and the PEs were unattributed when they did a bit of investigation. When I started anti coags, the headaches improved as well as the heart flutters, but it seems I've still got a problem there, even though its not as obvious.

I've recently followed up on some lingering problems (fatigue, muscle pains, another more "interesting" thing) and these are pointing towards some autoimmune problem(s) and apparently APS wasn't properly investigated so that remains on the cards. Another set of appointments at the hospital :-) ...

I too have noticed the disappearance of headaches since I've been on coumadin for the last year and a half.....
Before my dvts and embolisms I did have lots of headaches a few months before...

I suffer from migraines. My headaches did flare up for a couple of months right around my PE (12 - 16 per month), but otherwise I am personally convinced that I can keep them mostly at bay with aspirin in the morning.

When I was on warfarin, I had the same sense that the warfarin was helping. I get this sense that my head feels cloudy every day. Almost like my blood is too thick in my head. Aspirin or warfarin seems to clear that cloudy feeling up. I still get severe migraines about 3 to 5 days a month that are not prevented with aspirin or warfarin, but on other days I wouldn't trade my aspirin for anything. Prior to my PE I was addicted to Excedrin. I thought it was the caffeine. Now I am convinced it's really the aspirin that was making me feel good every day. Post PE I just do aspirin instead of Excedrin.

I'll add to this as well. My "incident" (as I call it) was back in May and I've noticed that my Migraines are gone too! Mine are either triggered by sunlight hitting me in the 'wrong way' or chocolate (so cruel!), and I haven't had one since.

After my first round of PE's I noticed a decrease in migraines, only 3 a month while on Coumadin. When they let me off of it my migraines increased to 13 a month! Now that I have just been diagnosed with another PE and am back on Coumadin, I will be interested to see if the migraines decrease again. When I mentioned my findings to my migraine Doctor he didn't think it had anything to do with Coumadin...just goes to show, sometimes we know our body better.

The lessened headaches seem common enough, I'd be curious to know the scientific reason. It does make sense that if blood is running more smoothly that headaches might decrease. My doctors have all seemed curious, but none seem to know why. I still get the occasional headache from heat or tension, but I haven't had a migraine in 6 months now.