Hi there :o)

I'm 4 months out of a PE and just had a couple of the worst days of pain throughout the whole thing. I've read lots of peoples stories and pain definitely seems part and parcel of the healing process.

I was very anxious for a start wondering if it was another clot. I suppose it's just getting to know your body and if the pain seems to change then get checked out for your own peace of mind. Sorry I can't offer any other advice but I can empathise on the pain.

Karen xx

I think it is different for every person.
And unfortunatley, I think pain is the norm around here.
I had no pain with my first PE, which was massive and bi-lateral.
I have pain 4 months out with my recent PE which was tiny.

Check out the "post-PE chest pain" discussion to know that you are not alone at least...

Many people have posted their lingering pain questions. What little luck I have had is that, at least between 2 weeks and 54 weeks out, there was no pain, knock on wood. That first two weeks was writhing agony and the only time in my adult life I took pain pills. It was Oxycondone I believe; took away the pain as soon as it hit the stomach. I can see how people get hooked on it.
Just when I thought I knew as much as I could ever want to know about all this, I got the Factor V Leiden Het news almost a year post PE. It was the final "aha!" in at least learning "why?". There is a bit still being learned about FVL, since it was not even discovered until 1994. A good place to visit is http://www.fvleiden.org/ .
FVL was one more piece of bad news that I got while fishing for a clean bill of health. Now, given the damage of the original clots, the presence of an IVC filter, evidence of chronic PE, and finally FVL Het, I will be on Warfarin indefinitely and probably for life.
As I get my spirits back, I may be looking for ways to participate in NATT or various Thrombosis/Thrombophilia causes in general, maybe even looking for per-mile fundraisers as I continue marathon running. In the eyes of the world, for all that has gone wrong, I have appeared to fit our description as the healthiest looking sick people.

Ulracher, Welcome to our group-although sorry you have had to join. It seems to me that pain is different for a lot of people. Some times it depends on how bad your clots were and whether ther was damage to your heart or not. It seems like people either have pain for a short time and get over it or it lingers on for a long time. I am 18 months post PE and have a lot of pain still. Besides pain medication, heat seems to help me a lot. If you search through the discussion threads on here you will find more answers. I now have fibromyalgia and chronic fatigue syndrome and regionl pain syndrome in my chest. I have tried massage therapy,chiroprator, deep breathing exercises, streching, and now having some sucess with accupuncture. Go slow and listen to your body as far as working back up to normal activity levels. I too find it frustrating, but have had to learn that this is part of me and the way my life is now -it takes some time for all that to sink in -give yourself some time -it will come to you when it is supposed to -maybe someone is trying to tell you to slow down? Blessings, Teri

Hi It has been nearly 8 weeks since my P.e and I am still suffering with pain I have been to see my g.p and she assures me that it is normal and people suffer with pain for a while after a thing like this I likeyou are am constantly worrying something else is going on but I think we have to rememebr our body does a great job at healing and gettingover things but sometimes it just takes some time