Pulmonary Embolism Support Group

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

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How long to recover from PE

The potted history, I had cancer in my appendix discovered by accident and removed in Jan 07, followed by 6 months of chemo. CT scan after chemo (Aug 07) showed multiple PE in both lungs, even though I was completely asymptomatic. Subsequent testing found that I have protein S deficiency so I am on life long warfarin.

By my own admission I was not the fittest person before any of this and I was and still slightly overweight (5'11" around 195lbs) I have been doing more exercise and right now I am on an 11 week ski instructor training course. On average I am skiing 4.5 hours monday to friday which I can normally handle except when we ski really hard or in heavy conditions.

What I have found is that although at the end of a hard run I am slightly out of breath, if I have to walk up slopes or fight my way out of some deep snow at higher elevations ( around 7200ft) then I really struggle to "catch my breath" and my breathing is quite hard and fast.

What I am wondering is this still because of recovering from the PE's, or because I am just not fit? or a combination of both.

thanks

Mark

Replies

CJMcCormick
CJMcCormick

Mark: It sound like you are in great shape in spite of the PE etc. I have had DVT with bilateral PE with infarc. My Dr says there is no pat answer for how much should I do or not do. He said listen to your body and it will tell you. But he did say slowly increase your activity. Mine hit Jan 10 and I may be doing 40% of my normal activity levele. Still hurts too much, get dizzy, heaviness/pressure in the chest etc....So I'm at the point of wondering how much of this do I have to accept as normal now. Anyway, you have found a great group of people to learn from; I know I have learned a lot on this forum.. Take Care.
deleted_user
deleted_user

Hi, Mark:

Based on what my doctor told me - and the posts on this support site (and thank goodness for this support site!) - it seems like recovery from PEs varies from person to person. In my case, while I returned to work two weeks after my DVT with bi-lateral PE, I still don't feel 100%, and I get winded very easily - especially if it is cold outside (I don't really know why).

A friend of mine who had the same thing happen to her didn't return to work for six weeks, and she said she didn't feel like her lungs returned to normal function until six months after everything happened.

I think it's great you are exercising! Keep up the great work.