Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Hey everyone!
Sorry I'm so copycat-ing Beecute! I know she just got back from the ER yesterday for the same thing.
I went to the ER last night at 11:30 My chest had been hurting and aching on and off since Sunday or Monday. I kept telling myself it was anxiety, but with every waive of aching and every sharp twinge, I made the situation worse and worse, finally last night I could not take it anymore.
I was so overwhelmed with the on and off pain, the pressure of "what if im ignoring trouble again" really started to put me in an anxious emotion spin. I kept taking my anxiety medication but it stopped working! My friends and family kept telling me I was fine. That it was anxiety and I was doing it to myself. But by last night i was just at my wits end, even if the pain wasnt really bad it had been going on for days.
I am 9.5 months post pe, and I hadnt had such chest aches in a few months, just twinges there and there so I was very alarmed with this.
And as per my last post my dr is weening me off coumadin, I will be on 2 mg for another few months.
My family is pretty unsupportive at this point in my recovery. They dont get what my problem is, why im so anxious, why i worry so much when my chest hurts and why im scared to be off coumadin, it gets so frustrating, but I know I cannot expect anyone but my ds friends to get this stuff.
My mom reluctantly agreed to take me to the ER after me and my gf had a fight about it ( she didnt want to take me because she knew I was ok) But honestly what is really hurtful is the night I had my pe, she took me to the ER to prove to me I was ok, and she was wrong. So you would think at this point she would want to take me? But whatever, I cannot make her get this, and I know she loves me.
So anyways I got there, they put me right through basically, I had blood work, ekg, chest x ray, and ct scan of my chest... I found out at around 2:30 am, that there was nothing wrong, everything came out 100% ok not clot not scaring not damage, But just like Beecute I have a lovely mystery pain, which was described to me as most like anxietry given the level of worry and panic ive been at. Or that I actually had inflamed muscles on my chest wall from over doing it last weekend. So I was really happy I was ok, but I wish there was something to take the pain away. I am going to lay off my anxiety medication as much as possible,
Im home from work today, I tried to sleep in but my body didnt let me ugh, i am going to take some tylonal today, and try to take a day to recoup mentally. I just started a new job last wednesday, so I think between the coumadin switch and the new job I have really been stressed. Me and my gf had a few fight recently which sucks and has added to the stress, we had been getting along so well for 2 months. I know its just the stress. UGH...
So im hoping I can recoup today, and I hope my pain will subside more, but a huge weight has been lifted knowing theres not a clot coming to get me. or anything else bad. I have an appointment with my therapist today for me and my gf, hopfully this will help too.
Thanks so much for your support my friends, I dunno what Id do without you guys... my family has given up .
xoxo Ashley
Sorry I'm so copycat-ing Beecute! I know she just got back from the ER yesterday for the same thing.
I went to the ER last night at 11:30 My chest had been hurting and aching on and off since Sunday or Monday. I kept telling myself it was anxiety, but with every waive of aching and every sharp twinge, I made the situation worse and worse, finally last night I could not take it anymore.
I was so overwhelmed with the on and off pain, the pressure of "what if im ignoring trouble again" really started to put me in an anxious emotion spin. I kept taking my anxiety medication but it stopped working! My friends and family kept telling me I was fine. That it was anxiety and I was doing it to myself. But by last night i was just at my wits end, even if the pain wasnt really bad it had been going on for days.
I am 9.5 months post pe, and I hadnt had such chest aches in a few months, just twinges there and there so I was very alarmed with this.
And as per my last post my dr is weening me off coumadin, I will be on 2 mg for another few months.
My family is pretty unsupportive at this point in my recovery. They dont get what my problem is, why im so anxious, why i worry so much when my chest hurts and why im scared to be off coumadin, it gets so frustrating, but I know I cannot expect anyone but my ds friends to get this stuff.
My mom reluctantly agreed to take me to the ER after me and my gf had a fight about it ( she didnt want to take me because she knew I was ok) But honestly what is really hurtful is the night I had my pe, she took me to the ER to prove to me I was ok, and she was wrong. So you would think at this point she would want to take me? But whatever, I cannot make her get this, and I know she loves me.
So anyways I got there, they put me right through basically, I had blood work, ekg, chest x ray, and ct scan of my chest... I found out at around 2:30 am, that there was nothing wrong, everything came out 100% ok not clot not scaring not damage, But just like Beecute I have a lovely mystery pain, which was described to me as most like anxietry given the level of worry and panic ive been at. Or that I actually had inflamed muscles on my chest wall from over doing it last weekend. So I was really happy I was ok, but I wish there was something to take the pain away. I am going to lay off my anxiety medication as much as possible,
Im home from work today, I tried to sleep in but my body didnt let me ugh, i am going to take some tylonal today, and try to take a day to recoup mentally. I just started a new job last wednesday, so I think between the coumadin switch and the new job I have really been stressed. Me and my gf had a few fight recently which sucks and has added to the stress, we had been getting along so well for 2 months. I know its just the stress. UGH...
So im hoping I can recoup today, and I hope my pain will subside more, but a huge weight has been lifted knowing theres not a clot coming to get me. or anything else bad. I have an appointment with my therapist today for me and my gf, hopfully this will help too.
Thanks so much for your support my friends, I dunno what Id do without you guys... my family has given up .
xoxo Ashley
right?
thanks so much for the compliment in following me to the hospital!
just being silly.
i'm so glad that everything came out ok.
i'm sorry you had to go through all that.
especially without much support from family and girlfriend.
i know how scary it can be.
take care of yourself and rest up.
hospitals are miserable places to rest.
huge hugs.
You know, I totally sympathise, it is so hard knowing the differences between PE pain, anxiety pain, and muscle pain - to me, they all. feel pretty much the same! There have been many times when i have been so close to getting myself checked out - but for some reason i always talk myself out of it...which is silly really, as i am messing with something which could be potentially very dangerous! so...all in all, i admire both you and beecute for getting yourself checked out, and i definately need to learn to be more like you two!
I'm so sad that your family aren't being as supportive as you'd like them to be! I think it's tough, for those who are not in our little PE gang, to understand what we are going for and why we are so anxious! It has been said many times, but we are surviours, and we have all learnt the hard way - that life is very precious and that it can hang in the balance at any time, and at any age! So, no wonder it is so hard for others to understand. Those who have not been in a life-threatening situation don't always understand! To be honest, i've kinda given up in trying to get people to understand how i feel, because no matter what I say or do it wont make people 'get' me. It's not their fault, but most people take life for granted and always think it will never happen to them! But, you can always count on us to understand where you're coming from - so if you ever need support you know where to come! I must admit, I actually think the whole PE recovery thing is a very lonely process. You could be surrounded by loads of family and friends and still feel lonely - coz i think that until you've been in that situation, people just don't understand what it's like to be constantly battling with anxiety surrounding these stupid blood clots!
So...i'll stop rambling now...but i want you to know that what did is so right...and i need to learn to be more like you and listen to my body! stupid blood clots xxx xxx
Nancy
HUGS
FERR
Much love,
mary
It is hard for people to understand our illness unless they have walked in our shoes.
You are all such wonderful people, and i know I never would have made it this far without you.
Hopper I have a questions where are your muscle pains? Cuz I find the my upper torso and shoulders are where I ache a lot, could it be the meds????? Im not offically off coumadin for a few months i wonder if they will go away then hmmm....
I am sorry about your friend who doesn't understand. Sometimes people don't want to be bothered, but sometimes I think they see us and say if it could happen to him/her then it could happen to me and not being around us makes it go away - at least for them. It took me a long time to get over the hurt and relaize this when I was diagnosed with breast cancer 6 years ago.
Jen
I'm so glad that you got your mom to take you to the ER..... and I'm extra happy that you were not having another PE. This is a scary time on a very low dose of coumedin, but you did the right thing. I don't check in as often, but it seems like someone (God??!) has been nudging me to check out DS more often in the last few days. It's been interesting to see you and Dawn on here.... plus hopper (nancy) and everyone else from the last year. I am beyond grateful for all the support and love that we all receive from our DS-PE support friends....
Get some rest, try to let go of the stress (much easier said than done especially for me) and take a deep breath. You're doing so much better than I can ever imagine I will do. I'll probably have to place a reservation for a hospital room if and when they take me off!! :) I'm such a worry wart!
Love you my friend!!! hugs.... Lori
I still pray that this pain will somehow go away, but after a year and 1/2, I think I am stuck with it and am told I have to learn to deal with it for the rest of my life -gee thanks healthcare community -of which I am a member. I would never tell a patient of mine, "Well, you'll just have to learn to live with it." You did the right thing -you are a survivor and sometimes you have to do what you have to do to continue to survive. Blessings, Teri