So I am going to start off with some history here.. I am a 20 yr old female with asthma and other than that very healthy. No family history of anything major just asthma and my mother is slightly anemic. Anyways here it goes! 

February of 2017 I began to have a bad asthma attack. I tried to use my inhaler but the attack kept getting worse so my fiancé rushed me to the er. I was IMMEDIATELY taken back because I had a heart rate of 160. I was able to get my breathing under control but the doctors had a hard time believing this was an asthma attack. The nurse said it was and the doctor told me it was anxiety.. I have never had anxiety before and felt they were just dismissing my symptoms because the other tests showed nothing. They did do blood work to make sure I didn’t have a PE at the time and it came back negative and I was discharged. 

A few hours later the breathing attack came back and we were off to a different ER to see if they could provide answers. I was given a CT scan of my chest to confirm no PE and was given a breathing treatment and I felt 100% better after (confirming that it was asthma). 

I followed up with my PCP who sent me for more blood work and started me on a new asthma med. Because of my heart rate they wanted to set me up with a cardiologist to get an echo done. As knowing nothing was wrong with my heart I denied the referral and was insisting this was my asthma! After 6 months of being on Pulmicort and Breo (asthma meds) I was finally getting relief. My asthma started to flare up again in September and again the battle with my PCP began. She didn’t think it was when I knew it was asthma. Anyways I had a very bad asthma attack in November of 2017 which put me in the hospital for a few days again with the high heart rate and my blood work came back acidic. I received an echocardiogram while in the er and left against medical advise because my PCP pretty much told me I didn’t need to be there and he would discharge me the next day so I didn’t want to wait and just left. 

So I followed up again with my PCP and he claimed I had pericarditis which he explained to me as extra fluid around the sac of your heart and told me to take Motrin and it’ll resolve itself. 

December of 2017 I again had a bad asthma attack and called my PCP which presciribed me predinisone. Did that for a few days and ended up in the er again due to another attack. The er doctors told me I need to see a pulmonologist for my asthma because I was in the er to often. Told my PCP that and she argued with me saying it’s not my asthma. 

I finally switched PCP to my doctor I see now who has been wonderful. In late January of 2018 I caught the flu. I started tamiflu asap due to my asthma and was sent home. After a few days of not feeling ANY better I went to an urgent care place because my cough was horrible along with all of the other flu symptoms. She prescribed another round of prednisone and some cough meds and see if that would help. A few days on that and I was feeling worse than ever. Went back to an urgent care place because I was now coughing up small amounts of blood along with not being able to breathe without a sharp pain in my back. He brushed it off as bronchitis and gave me antibiotics and sent me home. I gave the antibiotics a few days and STILL was feeling horrible so the doctors told me I needed to go to the er. I was given tons of fluid because I was severely dehydrated and given IV antibiotics. The doctors seemed slightly concerned about coughing up blood and the pain but did a blood test to “make sure” it wasn’t a PE. That test came back negative and was discharged and was told to follow up with my doctor. 

I got into the doctors office that next morning and told her all of the symptoms I was having and she immediately sent me to get a CT scan of my chest to eliminate the possibility of a PE. She didn’t think I could have one becaise I was in none of the risk groups but my scan showed multiple clots! I was sent to the ER and given Xarelto and some pain meds so I could breathe. 

I followed up with my doctor and she sent me to a hematologist to figure out why these clots formed because again I was in none of the risk groups and had no symptoms of DVT. I just went last week and he sent me for blood work and ultrasounds of my legs and abdomen. Scans show no clots so back to square one and hoping the blood work shows something! I just got a call from the hematologist and he wants me to go for MORE blood work and to see a vascular surgeon. I have an appointment with him the 26th of this month to go over the tests. 

I am just looking for someone to talk to and relate to because I am just so frustrated being sent to a million different doctors for them to run the same tests that came back negative! I am so ready to give up! I am still having shortness of breath and the pain in my back even 2 months of being on Xarelto. I am also having an extremely heavy menstrual period to the point the doctors sent me for blood work to make sure I didn’t need a blood transfusion. I’ve had headaches from these meds and also feel my joints are becoming very achy. I am so fed up with this and just want answers!