Hi there- I also feel horrible and cant wait to get off the coumadin- I am fatigued and have gained weight. Have you considered that you might be clinically depressed? depression can cause all kinds of physical symptoms as well as emotional- you might want to ask your doctors. (Although i a convinced the warfarin is causing the majority of my physical and emotional problems) I hope you feel better- you are a beautiful young woman with your whole life ahead of you- this whole Pe thing can really shake you up- but that is why we have this support group online. Sometimes when i get in a funk and want to stay in bed all day- I just think of something i have put off doing and i go do it- then I feel like I have accomplished something. it can be something small like doing the dishes or whatever- i blast some music and go for it. (then I reward myself by calling a friend or doing something i enjoy) hope this helps - Jenine

Tooooootally, ditto. It does make you feel like crap. Tired, the headaches that others have talked about on this site have finally started for me (especially if I'm stressed). I had a really bad bout of night sweats last night, and I'm just generally grumpy and not myself. I don't know if it's medication related or just PE related though. I can't seem to let go of this epic seriousness I've had since the PE ... and I've never, ever, ever, ever (ever!) been anyone to take life too seriously.

That being said ... just keep in mind: "And this too shall pass." Nothing stays the same forever ... which means the sadness will go away. Maybe not today or tomorrow, but it WILL go away. Hang in there, you'll get your life back!

Yaeh Its funny that it comes at different times of the day. I felt pretty good today at the neuro surgeons(He says I am NOT a candidate for neck surgery!) but after my acupuncture session am feeling really light headed. Walking is hard I've had 2 surgeries on my hips that feel a little wobbly. Going into the bank this afternoon I was headachy and apprehensive. Yet I have had some very fun, light hearted periods recently. Well for me this malaise has got too be the PE or the Coumadin.

From fellow members here I have had 2 replies for Dr.s that substituted Coumadin for 2 different drugs. I can look them up. I have also gotten a few replies saying that after 2 months it gets much easier with the PE and Cuomadin. All I know is that I have to go 10 more months.

Am going to try the swimming pool soon. My disability has another month. Got to get back to work.

Keep positive! We'll get through this for sure!

Hi
my mom is going through the same thing you are. She was diagnosed with PE in October and is very weak, tired, and heaviness and pain on chest. I know myself and she thinks also the coumadin has alot of effects on her which the doctors say no. You read all the other people on here with the same things, night sweats, now mom's eyes are effected from brightness and i really believe its coumadin.
My mom feels the same way you do, she too was healthy and very active and now i know she is really upset she can't do much, and my dad is doing it all for her so she gets frustrated why she can't do it cause she feels so tired and weak we keep telling her she took care of us now its our turn, give it time, it will get better soon.

I wish you all the very best, and hope that you start feeling better soon. My heart goes out to you, I know what your going through seeing my mom and it really kills me to see her that way!!!

If ever you need a shoulder to cry on talk to I would be happy to listen, as i told my mom I am here . Don't give up its gonna get better!!! take care

I can't say for sure if I have any side affects from the warfarin or
not. I did notice side affects from the Lovenox injections though.
Thirst,fatique, and loss of appetite with weight loss of about
five pounds.

I have my cranky, headache moments. Lately my head hurts when stressed. I have trouble falling asleep and then trouble getting out of bed. I think its the warfarin/coumadin. i also seem to be losing hair. It comes out in small clumps when i wash it. I've also had a decrease in appetite--lost 15 pounds--that might be since i'm not on bc anymore. I'm doing my best to stay positive--anti-depressants help me somewhat. We will all get through this together!

I've absolutely have warfarin/coumadin side effects. at first the anticoagulation pharms told me it was all in my imagination and warfarin has no side effects. Then i did research here and online and there's tons of sites that say nausea, vomiting, fatigue, hair loss, short term memory loss, headaches, general weakness are all things that though "infrequent" happen to people on warfarin. I lost over 20lbs in the first two weeks from throwing up constantly. Hair loss, memory loss..i feel like dory in finding nemo, extreme fatigue and weakness. I am anxious after never having been anxious in my life, and depressed too. I documented how my symptoms increased whenever my warfarin doseage was increased. They tried to blame it on everything from i'm dramatic to i'm a vegetarian, but finally the documentation didn't lie and i had proof. The pulmonologist and primary care finally had to admit i am indeed warfarin intolerant. You're not crazy to feel like that, and you're not alone. Don't let them dismiss how you're feeling, insist that's it's a problem.
I definitely think you have to pace yourself. Set mini goals to accomplish, share what you're feeling with friends and family, ask for help and support. We all grieve the loss of our lives before the PE. but you can find your way back to a normal life again with a little patience and faith. wishing you all the best.

I have been on warfarin since July and feel like I permanently have the flu - so fatigued and achy. My concentration is really affected too and it's like my brain gets overwhelmed really easily so I end up feeling dazed and confused...So I totally sympathise.

You should be really proud of yourself that you can make it through the work day though. That in itself is a great achievement after what your body has been through. (Not that I can talk though - I am constantly getting frustrated at myself for not being able to keep on top of everything.) As hard as it is, try to focus on the things you can do and have achieved, rather than the things you can't.

I still get my blood drawn daily until they stabilize my coumadin dose and every time I go up in mg's I feel kinda funny, a little wooziness and mild anxiety. At least I'm done taking 2x daily shots of Lovenox. I'm only 3 weeks or so into my diagnosis so I thank you for your entry... it helps me not feel alone in this.

And yes, I feel tired and crappy ALL THE TIME! I have 4 children so I was tired enough as it was ! :)

You are not alone.

I felt terrible on warfarin and so did my father. I just never felt right. The dizziness was there for sure as well. I was able to switch to lovenox injections which have been much better. There are drawbacks to this as well (my abdomen is constantly covered in bruises) but for me it is so much better than when I was on the warfarin.

Don't worry - you are getting better! Even if you need to stay on anticoagulants for life, there are some new drugs coming out before too long that could be great alternatives.

Cupcakedcay~
Warfarin/coumadin has got to be one of the worst drugs around. My dosage was all over the place until just recently. I too have had my PE almost 4 months. I am thankful that I have a sister who is in the med field.....she keeps telling me that if you were in a body cast people would be more simpathetic however since you look somewhat normal they assume you are. I have been the same place you are ...sad, frustrated, achey, headaches etc....had to tell my fam that if I was better that I wouldn't be taking the 6 diferent meds that I am.....they have been pretty good since that tantrum.
Hang in there girl...what you are feeling is "warfarin patient normal".
I have noticed that once my dosage is stable I feel better...side effects dont come as often.

I'm 5 weeks out from the diagnosis and I am on warfarin. I feel like crap all the time. I am sore constantly all over (like someone else said it's like having the flu). I've woken up with head splitting headaches most mornings. It really is hard to even imagine moving from place to place in my little apartment. I still have to find the energy to go to the clinic a minimum of twice a week. It's not easy and no one is alone in this. This support group is great!!

Really interesting to read all these comments, I can relate to pretty much all of it. Been on warfarin since June and thought I was going mad as I've been experiencing a lot of these symptomes, constant fatigue, dry mouth etc Hard enough to deal with the physical symptoms without having to beat yourself up thinking it's all in the mind. So frustrating and depressing not being able to feel the way you did before PE but that seems to be par for the course. You're not alone, hang in there.

Thank you for this topic, I thought I was going crazy! I just called my best friend tonight and told her it was a good day when I took a shower and got dressed in clean clothes. I have no energy, am depressed, just don't want to do ANYTHING. I am always exhausted. I get dizzy, have no appetite. My hair is falling out in clumps enough to fill the drain when I shower. I've bought 6 hats and taken to wearing them indoors and everywhere. I throw up and have diarrhea and stomach cramps with no warning. I am always cold, and this is the first time in my life I've worn a hat and scarf in the winter. (I'm 51) After 8 weeks now, INR still not stable, doctor still tells me to do nothing and I'm scared to move much. This coumadin is just awful for me. Thanks for listening...