I have had GI problems for most of my life, but a few years ago, it got so bad I hated even leaving the house! My doctors all thought it was crohns, I had every symptom. However, two biopsies came back negative, and none of the meds (tried 4-5 different ones) worked. At this point, I am basically just diagnosed with IBS. It caused havoc on my body though. I became deficient in many vitamins, thus causing my peripheal neuropathy.
Do you a lot of liquids thst are sugar free? I drank an enormous amount of diet coke and other artificially sweetened things. Once I cut out the aspertame, it made a world of difference for me! Within two weeks of giving it up, there was a tremendous difference! That may not be the dame for you of course, but it is what helped me.
I have read that there is a connection with colitis and clots, but I don't know much about it. They asked me a number of times while I was in the hospital about my IBS but they never explained the connection.
I feel for you and can relate to what you are going through!!

Thank you Jean. It is comforting to know someone else has been through the same two things. I am very careful with my diet. I eat only the lightest of meals or soup with Ribena. I never drink fizzy drinks, alcohol, coffee and I never eat chocolate, cake or anything. I still get chronic stomach, abdominal, GERD, back pain and diarrhoea or loose stools. The PE was actually the easy bit in comparison. This is ruining my life. But I cannot go back to the doctors - he said there is nothing else he can do. I am getting quite depressed and scared and this is not like me. I was very fit and known for my energy, working in Africa a lot, but I cannot do any of that anymore.
How is yours now?

I cannot believe your doctor said there is nothing more he can do!!! Is this your primary doc I assume? You need a GI specialist. It truly does feel like it is ruining your life. When I was at my worst, I didn;t even feel comfortable leaving my house for more than an hour or so becasue I never knew when things would strike, not to mention the fact that is takes all of your energy. I am so sorry you are going through all of this.
I am much better now, thanks. Ever since I gave up the aspertame, everything improved dramatically. I am still not what I would call "normal" but I can lead a relatively normal life with it (pre-PE that is).
If it is taking over your life, I would demand a referral to a specialist. And if he won't do that, my advice would be a new doctor.
This happened at the same time as the PE? Or after? I wonder if it can be related to meds? I don't know much about thst being new to all of the PE stuff.

To be fair he did refer me but I had to go private. The gastroenterologist briefly examined me and said he was pretty sure it was IBS. I am booked for a colonoscopy in a few weeks. I went back to my GP because I am no better and cannot eat hardly at all and certainly not without a lot of pain. That's when he said he didn't know what else I wanted from him. I asked him to refer me to an IBS clinic but he refused. He told me I needed to live my life. I have been trying but it is too hard...

I swear by probiotics. If you can't handle them in yogert then take the pills.

When I started on Warfarin, I got terrible gastro-intestinal problems. It was just loose bowels at first, but then it became acid reflux and then barely able to eat or swallow.

I now take prilosec every morning and it worked.

Thanks Lizabee. The doctor did try Lameprazole but it didn't seem to work. They took me off Warfarin and put me on an alternative - sinthrome. That didn't work so they took me off all anti-cooagulants and gave me haparin injections instead. That didn't work so I am now back on the sinthrome. They have given up with me but I am so fed up. I have daily gastric problems from my mouth to my bottom and am now barely able to eat and ceratinly not without a lot of pain. I don't have time to worry about the PE. I have constant chest pain (which they think is GERD) which is sometimes very painful...which is obviously alarming when you've had a PE. I don't think I would know if I did have another episode except if it affected my breathing.