Pulmonary Embolism Support Group

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

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ldmendoza 10/13/2010

November 8th will be my six month milestone. I will see my pulmonary doctor on the 9th and the plan is for me to stop taking warfarin, then after 2 weeks do a doppler scan of my legs, then proceed with genetic clotting disorder blood tests.

Does anyone have a list of ALL of the recommended genetic tests that should be done?

I know my doctor mentioned Factor V Leiden, Proten S, and Protein C, and some others that I just can't remember. I want to make sure that no stone is left unturned, and I want to be prepared when I go to my appointment. If there is one thing I've learned through all of this it is that I am responsible for my health, and I'm no longer afraid to question my doctors.

Carolyn2 10/13/2010

Here's the list of what I will be tested for..
.factor 5 leiden,
aticardiolipin antibody,
lupus anticoagulant,
antiithrombin 3 level,
protein s,
protein c.
I was test for some others in the the hospital, so there might be more.

RetiredNavy02 10/13/2010

Here is a link which provides some great information. The physician who contributed to that information is a leading thrombophilia specialist:

http://www.fvleiden.org/ask/49.html

Regards,
Tom in Connecticut

ldmendoza 10/14/2010

Thank you both so much! Carolyn, all of your tests match up to the ones Tom sent me from his website, so I feel confident that I know what to expect.

I truly appreciate the info.

Carolyn2 10/14/2010

I was happy to see that my doctor is right on in the test she ordered.

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