Pulmonary Embolism Support Group

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

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mattrenshaw 02/07/2016

I know this might sound crazy but has anyone else experienced weight loss and trouble trying to gain weight back since pe? I had a bilateral or with infarc end of November. Just curious. Thank you for any replies.

TossNTurn 02/07/2016

There have been some other threads on this... you should run some searches to see what people have said in the past.

This doesn't happen to everyone, of course, and it didn't happen to me. However, there's a couple of big reasons why it can happen for sure. First, any kind of trauma like a PE can set everything off kilter for a while. Sleep habits, exercise habits, and eating habits can all take a big hit after a traumatic event like getting a PE.

Also, it might depend what medicine you're on. If you're taking warfarin/coumadin and feel hamstringed by dietary issues, that could be affecting things as well.

If it is neither of those, I would check in with your doc to talk about it. Anything that is of constant concern should be talked about, for sure. Maybe he/she will have something that will help put your mind at ease.

echo86 02/07/2016

I lost weight after my first bilateral PE with lung infarction in May 2014, but it was clearly because of all the pain, physical suffering and lack of physical activity. I was never particularly hungry, and some of the painkillers used to really upset my stomach.

I would discuss with your doctor, if the matter concerns you.

All the best!

renaec23 02/07/2016

I've lost 30 pounds since my PE four months ago but I've had a lot of bouts of anxiety and depression which made me lose my appetite. I have also tried to eat healthier because I'm overweight and I know that's extra stress on my heart.

mattrenshaw 02/07/2016

Thank you all. I'm on xarelto so no diet restrictions and had a stress echo and checks out okay. Been able to walk two miles every day for a few weeks now. Been eating cleaner maybe that's it. Still get the weird heart flutters and heart rate jumping up. Not as often as it did but always takes a while to fall asleep.

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