Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Well I had my neurosurgen appointment today and he suggested a LP Shunt.....I guess it was a bit of relief to hear that the shunt he thinks is best for me wont be put in my head. So for everyone with a LP Shunt please give me all the info and advice that you can. I still need to pick a date for the surgery but i know that i am going to do it before the end of the year.
I think it really helps to center you, and helps to deal with things better.
You sound relieved that its a LP shunt? I'm glad the NS listened to your concerns.
I have a VP shunt so cant help you there, but for any thing else, as always, I'm here for you. Cath.
I don't have a shunt, but I'm here for support. Are you OK with this? It sounds like you are, at least now you have some answers. Nancy
Basically what I got from what you said is that you're happy with this course of action, so long as you have a course of action. Is that right? Because if you're at all worried about the shunt in more than a typical (What if it doesn't work? What about revisions?) kind of way, and really don't want it, then don't go through with it.
Take time to mentally process. We're here for you in the mean time :-)
Mary
Message me any time. You can ask me any and all questions :) I may not be the most helpful since I just had mine put in less than 3 weeks ago, but I would love to help if I can. Jazzy would be a great person to ask!
I will be keeping you in my prayers!
Mallory
Like Mc said deff. take time to process this I was in the hospitall after 12 days of vomiting due to the Diamox failing on me after only 5 mths. & in 3 days I went into surgery,I don't really know that I had that process moment u know ! ...My Lp adjustable valve went in sept 22,2010 so it has now been 1 year.. I'm sure or I hope your surgeon has told you that 1) this may not stop vision loss if thats your case 2) it may or may not help your headaches & 3) The shunt is placed to control the draining process of your CSF...
The raw side of this is IN MY CASE because I can only speak for myself is the complications that I ran into,my 3 day stay turned out to be a 14 day stay due to an air pocket a few days later that was found lodged under my liver and lung taking 5 weeks to resolve itself,this does not just happen I'm sure It just happenend to me unfortunately.My other RAW point ,, my sergeon did not lower the setting after he put it in me leaving it wide open at 160 so my pressure ofcourse was peaking before the shunt kicked in to drain my csf.After 1 week he lowered it and I did have low pressure HD deff. want to lie down for those !! Ice packing got me through alot of days and even today I still have to do this.I don't say any of this to scare you in any way I just wish someone would have been more open with me so that I could have expected the worse and if turned out to be better then I could've felt like I was ahead of the game... So take all of this with a grain of salt... I sure hope all goes well and you do well with the LP. I myself well it has deffinately been a challange.I have gone in 6 times now and had to have the setting lowered I'm now at 80..
That some of my story I hope something here has helped or at least opened you up... if you have any ?'s I can try to answer them I just like the rest of us here are all here for you,I'm also sure that someone here has way more knowledge then I and I will share with you any thing that I MYSELF have been through So if I can help just ask away !
I wish you well and will be praying for you and a fast recovery please keep us up to date on things xxx angie