Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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/ Pseudotumor Cerebri Support Group

Vision problems, still

loveyalots143
loveyalots143
Ok so the last two days I have woke up with a nightmare of a headache. This morning I woke up and can't see past the end of my arms. I tried going back to sleep with ice to see if it would help, and it didnt. My neuro closes at noon but I called and talked to the on call doctor, they want me to go to the ER. I know my pressure is high - my eyes hurt Realy badly - but I'm afraid to go to the ER because I know they will want to do a tap (again) Any suggestions?
mary1973
mary1973
Please go your vision is a vital needed for so much. When you get there ask that a neuro opthamologist see you, as I feel neuros dont do adequate testing. You can always tell em your having visual auras, seeing snow.
Sophiasmom06
Sophiasmom06
yes, please go, it sounds like you need a tap to get your pressure down rapidly. for your vision.

the big clue is you WOKE UP like that. so what happened in your sleep? what is going on with the new sleep study, or the report on the prior one?

yeah, going back to sleep if you wake up like that, is probably not a good idea. probably better to avoid sleeping more than 6 hrs until you can get control of your OSA. that way you avoid the deep REM periods that will make everything worse.
loveyalots143
loveyalots143
Ok - update - I'm in the hospital still, they did a tap last night then today referred me to the on call neurosurgeon. Because of the vision loss, and other stuff (sorry brains not functioning to well) they are going to do surgery on Monday afternoon to put in an lp shunt. In the mean time, he is getting scans and consults with other doctors (opthamologist I think). Thank u for words of wisdom.

Kristena