Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Also, what is a circular light shining, like as a stop light, she sees as a star. I just recently found out that she has seen those star lights her whole life. We drew pictures of what a lamp post or stop sign looks like and hers were weird. Her paps is almost gone, so guess this is just another part of the IH?
The most obvious are the fire works,black spots, halos,millions of floaters, black smudge marks on anything that is not black!
It was a real problem when I was painting the house.I could never tell if it was painted enough as it always looked dirty.
The big deal things I see are, the spiders and floating patterns.
The spiders are in my right eye side vision. When , foe example, I am watching TV, they climb up and down the curtains and across the floor. Good job I am not afraid of them! They also run across the key boards if I am too tired or spent too long on.
The floating patterns are quite fun. If, I have a sweater on with a pattern, if I lift my arm, when I put it down, the pattern "floats" in the air, slowly falling to the ground. Print on papers follows me across the room as well.
It has gotten less but again, if I get overtired or my pressure is very high, they all come back.
ihateptc,I see a star as well! Very bright and shiny, in my middle vision. I see stars a lot but this one has always been there. When I close my eyes at bedtime, there it is, shining away. I also see, and this is a bit worrying, ( for my mental health!) our old bedroom , that we first had when we married. Its as real as could be. My eyes are closed but if I open them slowly, I can see the bedroom, then as I fully open my eyes it fades to the real one. Really weird. Cath.
It could be a lot of things. What do you see? If it is something detailed, like hampsters crawling around on your pillow or a Ferrari in your driveway, that could be a simple partial seizure. (look up temporal lobe epilepsy in wikipedia)
If it is something simple, like squiggy lines, a geometric pattern, etc., it could be a migraine aura.
If it's dots and floaters, there's a thousand things that could be.
I'm sure there are a billion other possible causes, but those are the ones I'm familiar with.
A trip to the opthamologist would probably be a good idea, as a start, then your neurologist.
Charles Bonne syndrome.
I only have a small bit of it but if you Google it, it is really fantastic.
Strangely, who ever may be experiencing it, are not afraid. Some thing I agree with. I think, I knew it couldn't be true and found it quite funny.
But some people see all kinds of things, like a house, people, and they would be hard pressed to say they are not real.
As I have said before, this illness just keeps on giving! Cath.
I so see things out of the corner of my eye occasionally and do a double take - nothing there. This can make driving difficult. I now barely drive with the headaches I have. I really honestly do not feel safe. I kinda feel pathetic. I do not want to drive at night at all. The car lights kill me. I sometimes wonder what is happening to me. But it is so hard to function with these headaches.
My doctor told me "don't let this take over your life" - so easy for him to say it is not his life - he is not in pain every day. That pissed me off that day!!
Sorry I just had to share that with you guys - glad I"m not alone with the seeing things...so good to know.
Mandy
Other times, it seems real for an instant, like I see a shadow of a person in the peripheral of my vision. Or I see something move, but nothing is there.
Sometimes I've seen a black bug, felt it too, crawl across my arm. Like a hallucination.
Flickers of light, blurring, etc. etc..
So glad to find out from others here, that it is part of disease, since no doctors will tell you that it is normal to have such strange visual disturbances.
I've never done street drugs, so it freaks me out, to feel out of control, and that I'm going crazy.
Buttercup....My family still doesn't understand why I have such anxiety to drive, but it does not feel safe anymore.. Besides HA's and visual problems, I also get vertigo, disorientation, and numbness in feet and hands. It is so discouraging sometimes, to not feel normal at all.
Have you been to an opthalmologist?