Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Hi Everyone, I want to ask aside of our usually SX - Headaches,ringing,migraines,ect...pressure from CSF. If Anyone Experiences - muscle weakness,(body pain of any kind )- pins and needles,swelling,Peripheral neuropathy,or CNS involement ? Thanks For you Input ! mommies4
headaches- 2-8 almost daily
ringing- yes
migraines-hemiplegic
muscle weakness- facial, legs, hands
body pain- back (near left kidney)
swelling- eyelids, fingers, legs (randomally and not all the time)
can hear heartbeat in certain positions when pressure high
ear pain
neck pain
spasms in calves, face
shooting pain in eye
back pain
headaches - not as many since topamax
but when she gets a headache she has to go to bed with ice
swollen face and hands
Think that's it so far.
CSF between 49-34.
Daily hds.With out pain meds, 7-10. with, 2-4.
Constant balance issues.
Migraine, twice a month.
Ringing, starts about 6.oo in the.evening +"echos" all day.
Heartbeat to put me to sleep.
Aching neck and shoulders, in the evening.
Eye problems, blurry, no peripheral,seeing black spots and silver balls, ( I could go on...)
I had pins and needles and peripheral neuropathy, at the start,. I was very low in folic acid, which continues but taking supplements on a regular bases now.
Ear aches ( but there not)
Swollen face, when pressure is high.
Hope this helps. Cath.
Ringing: almost constant
Muscle weakness: yes
Body pain: Neck (sore), eye pain
Tingling: due to meds
Nausea, sensitivity to light, pins and needles in face, hands, and feet, vomiting, off-balance, floaters in the vision constantly.
Hope it helps!