Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
So I had my regular neuro appointment on the 3rd, there they set me up with an opthmologist and incresed my diamox. I went to the opth. on wednesday, 2/16/11 and the paps are gone! So at my neuros office she still seen the paps and then 13 days later they are gone? can it work that fast? Then if so why do i still get some of my vision problems? Whats the next step?
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I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
They should if they haven't yet.
I don't know how they could go down in 13 days to nothing..I've been on for months, and mine have improved but are not gone...sounds strange...
Call back to your neuro and optham, and find out what is next for you.
I have had them for over three years, and even tho i had a shunt and then taking the meds, nothing happened. Now, when I am no longer taking Diomax, they heal. Well, almost. Just like that. So, who knows? just go with the flow, and be glad.
Cath.
By the way, I asked Ophth last month, if the paps are better how come I still have visual problems?I don't know she said, may be nerve damage?!
But thats just because at first for timing i went to one optho across the country( saw pap's only with the photos), but when i got home a optho didn't see pap's but didn't take photos since he didn't see them with a slit lamp test. 3rd NO saw them with photos and with a slit lamp test.
aka i only trust the photos on if i have paps or not