Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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notsurewhat2puthere 09/11/2012

I have a new neurologist appointment in the morning. I'm q bit nervous about it all, but excited at the same time. I really want some answers.

meweird 09/11/2012

I hope it goes well for you! new doctors are always scary till you know if they are good or not. I hope you found a great doctor!

notsurewhat2puthere 09/11/2012

I feel like that was a huge waist of time. I go back on oct 30th to the eye doctor so if my paps or visual field have worsen then they will do a lumbar puncture because were not even sure my original opening pressure. He said there is a veign in the back of my head that is narrowing but he's not sure if it's to be concerned or not. He also said my headaches are not consistent with iih! I'm so frustrated, I never had headaches before!!! Now I'm all worried about this narrowed vein :/
After my knee surgery tomorrow and I'm feeling better I'm going to call the eye doctor and move up my October appointment. They act like I don't have iih. What else could it be? And my paps respond to the diamox...I hate being treated like I'm dumb

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