Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
I know you are nervous, so write down your questions before you go. If you can, have someone go with you to be your second set of ears. Can't tell you about shunts but I know of a few that have asked for a drain test first, where they will put an external temporary drain in and monitor it over a few days to see how it works and if they're a candidate for a shunt....Hope your appt goes smoothly. Nancy
Take this appointment nice and slow, no need to rush. The NS may see you a couple of times before they decide to do anything or they might want to set up a date right there. Just breathe like Nancy said, everything is gonna be fine, nothing to stress about. Just share your concerns with the NS. :)
Mallory
Seeing your NS is the next logical step I think.
Write your questions down, before you go in , the night before. Study them, then cut them back to 2 -3 main questions. If they see a long list , it scares them! try to encompass all you concerns in those questions.
Bring some one with you , if you can. They don't talk, just take notes for you.
Ask which shunt they prefer and why.
What problems can they cause afterwards?
What if, your pressure remains high?
What if your paps don't improve? What if your hds return? Do they have a plan of action for that?
Will you continue with meds?
Where is the position of the VP shunt? ( there are a few different places to put it and each surgeon has their preference)
How much hair will the shave off?
How long does he think you will be in hospital for?
Do they prescribe pain killers before you leave? (Important! What if the chemists are closed by the time you get home?)
The recovery questions, we can help you with.
Stay calm, and remember its his job to explain every thing to you.
Post when you get back ok? Good luck! Cath