Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Hi, I have a friend who had a Mirena IUD and has been diagnosed with Psuedotumor Cerebri and has pretty serious side effects. I was wondering if there is anyone else in here that has had experience with getting the Mirena removed. We are wondering if you saw decreased symptoms or if removal did not make a difference. Any info is appreciated.
So sorry I couldn't say otherwise.
I did not have Mirena, I had Nexplanon when I started having symptoms then was on a progesterone only pill. My symptoms didn't improve at all on the pill. I've been off of it since 10/15 and after a few days my headaches almost completely went away and they've still been improving since. Unfortunately I still have pulsitile tinnitus which is what has always bothered me the most. It has improved though and I generally don't feel the pressure in my head and ear (only the right bothers me). I can pop my ear now - I couldn't for awhile. I'm hoping this eventually goes away too, but I don't know. I really don't trust doctors' opinions on it right now so I don't know who to ask. No one ever considered birth control for a cause except me. I also had PTC when I was in high school and it was from taking minocycline and it resolved after I stopped taking it, so I wasn't going to take "it's idiopathic" for an answer. I'd love to know if anyone else has had improvement after stopping any type of birth control.