I just saw a new caregiver with new ideas for me. Redo blood labs, redo MRI of c-spine, Begin Claritin & Zantac. Talked about future treatment/management candesartan or atenolol. Talked about Namenda/ Nuedexta, lamotrigine, hormonal treatment, botox. Talked about nerve block. I'd love to hear if any of you are getting results from the above mentioned.
I am on Candesartan to help with IIH symptoms. I suffer with terrible vestibular problems (migraines). Is anyone else on a blood pressure RX to help with IIH? My doctor said Candesartan can help. She has even used it for folks who have lowish blood pressure to help with the symptoms. My blood pressure is normal but a high normal.
My nausea is still present but stepped down and much less volatile. My recovery from bouts of extreme nausea are quicker. Four years of being sea sick is too long. This is a welcome break.
Hello all - hope everyone is well. Last week, I saw my regular Dr for an 8-ish week check-up to see if the acetazolamide + weightloss is having an effect on my papilledema. The papilledema is still present, however, my vision has definitley improved as my left eye is no longer 'fuzzy' and on the eye chart my vision is back to better than 20/20, for which I am so thankful! My papilledma has...
Hi All! What kind of doctors do you see? My PCP appears to be ...not the smartest... and is telling me everything is okay and I just need to eat healthier... after daily headaches + confirmed papillledema in both eyes from optometrist + clear MRI/MRA + high LP opening pressure (27). She only ordered the MRI and LP because I asked to after looking up my own symptoms online. Plus I'm an...