Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
using Claritin and Zantac together suggests histamine intolerance. you may have a very knowledgeable doc there; most docs are not aware of this problem. my daughter has it and it seems to trigger headaches, and these meds help. I don't know if they are migraines or ICP headaches, to know if these meds are helping ICP.
Namenda blocks glutamate, which can cause brain edema. theoretically this should help. however it made me sedated and I couldn't take it. but everything sedates me so you might be fine with it.
I seemed to have improvement with Progesterone, which has been shown to reduce brain edema. however you don't want to take estrogens.
My nausea is still present but stepped down and much less volatile. My recovery from bouts of extreme nausea are quicker. Four years of being sea sick is too long. This is a welcome break.
I suffer from chronic migraines, which is very hard to get under control. I have low blood pressure is normal for me, so going on preventatives was hard for me. I take a blood pressure medicine, proprananol, and it helps keep my headache intensity on the lower end of the spectrum. I also take a medicine divalproex, which helps with mood and migraine, and it has helped with intensity as well. I have tried so many different meds to help with them, but it is really hard to find a long term one that will get rid of the bad ones. I still have a daily headache, but as for the ICP those headaches are gone. I have found Ibuprofen gives me a over medicated headache, so I don't take anything with Ibuprofen unless I have to. I used to take Amitriptyline, but it didn't help much. Blood pressure meds help for ICP and for migraines, especially for women at that time of the month. Anything can spike your blood pressure, which will then increase the ICP and migraines. I would definitely give the BP meds a try for a little relief at least.
Keep track of things you have tried because you might find out years down the road that those worked better later than what you thought they did at the time. I am now at a cross road to getting more help with the migraines and I can't remember for the life of me, what medicines I took for what headaches, and which ones worked better than the others. Dr's will also tell you not to google for symptoms and stuff like that, because they don't want you to think that there is something that might not be for your specific case, but it is really good to do as much research as possible. Also look at other cultures for their remedies, you will be amazed at what you could find, and also things that might help.