I just saw a new caregiver with new ideas for me. Redo blood labs, redo MRI of c-spine, Begin Claritin & Zantac. Talked about future treatment/management candesartan or atenolol. Talked about Namenda/ Nuedexta, lamotrigine, hormonal treatment, botox. Talked about nerve block. I'd love to hear if any of you are getting results from the above mentioned.
I am on Candesartan to help with IIH symptoms. I suffer with terrible vestibular problems (migraines). Is anyone else on a blood pressure RX to help with IIH? My doctor said Candesartan can help. She has even used it for folks who have lowish blood pressure to help with the symptoms. My blood pressure is normal but a high normal.
My nausea is still present but stepped down and much less volatile. My recovery from bouts of extreme nausea are quicker. Four years of being sea sick is too long. This is a welcome break.
My Neuro-ophthalmologist keeps insisting my headaches are unrelated to my IIH. I was taken off Topamax Friday and put on a blood pressure medication (even though I do not have high blood pressure) to help control the headaches. I’m starting to feel like a guinea pig with all the meds they are testing on me. Should I get a second opinion?
Is it normal to have back pain with this. I never know if it’s just my back hurting or from this crazy disorder