Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Hey all so my LP went good I must say my neuro is a pro he got it done so quick and with little pain. My OP was back at 38 which is what it was when i was first diagnosed. Here comes the BAD part...the now want me to take 3,000mg of diamox a day!!! I questioned it and they said just because my pressure was so high and that at my appoinment in a month they will probably decrese it. So anyone let me know what kind of things i should be looking for with this crazy amount of diamox. what can it do to my body?
Glad that your LP went well.
For Diamox, you want to do two things:
1. Stay hydrated
2. Get potassium
Be sure to drink lots of water. I always tell people to also drink coconut water as it both hydrates and provides the potassium that we need. I also eat a banana with breakfast every day. Be sure that your PCP checks your blood work on a regular basis, as they have to check certain levels and your liver.
You may get tired, I added 250mg this week and I get very tired.
Good luck and post updates!
Angela
I was on 3000 mg Diamox for several months. I had a severe loss of taste, and so I ate a lot of really spicy food- otherwise I couldn't taste anything!
Drink tons of water, and either get a potassium supplement from your doctor or just eat lots of bananas (smoothies, lowfat milkshake, etc). Coconut water is also good for that.
I still had a lot of tingling/numbness, it made me want to crawl out of my skin sometimes! Best thing to do is just distract yourself :-)