Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
I don't know anyone so I'm sorry I am not able to help. All I have is a neuro ophthalmologist and he is the best in Dallas. People fly in from all over to see him.
You may want to go to the support group for Neuro or it Might say Brain issues. There is one here like that. You will probably get more results from that site to find a good neuro where you live.
I'm saying a prayer for you.