1. Do you get neck or shoulder pain?
Yes. More back pain than anything.

2. What type of pillow(s) do you use
3 regular pillows

What position do you sleep in?
On my side.

4. Do you sleep with a cpap machine
No
A. If so do you use a full face mask or nose?
B. we're you diagnosed before or after iih diagnoses?

5. Do you have tmj?
Yes!!

A. If so do you sleep with a mouth piece.
No, the ENT told me to though. I should!

B. do you grind your teeth
Yes, often while I'm sleeping.

1. Both
2. Four queen pillows stacked on their sides
3 sitting up
4. Bipap yes
a nose mask
B after
5. No

1. Do you get neck or shoulder pain?
Neck pain and I notice my neck "cracks" when I have high pressure symptoms. By cracking I mean like when you crack your knuckles only this is my neck.

2. What type of pillow(s) do you use
1 regular pillow

What position do you sleep in?
On my left side or back

4. Do you sleep with a cpap machine
No, They did test me for sleep apnea but I don't have it.
A. If so do you use a full face mask or nose?
B. we're you diagnosed before or after iih diagnoses?

5. Do you have tmj?
No

A. If so do you sleep with a mouth piece.


B. do you grind your teeth
No

1. Yes. My neck pain is usually worse than my shoulder pain and I have always gotten some relief after my neck pops.
2. I have one memory foam pillow and four medium firmness queen size pillows.
3. I sleep however I can get comfortable right now, but usually I'm a belly sleeper with the top half of my body at an incline. I've had a really hard time sleeping any other way since my last car accident 5 years ago.
4. No.
5. Yes.
A. No, but I should. I just don't have $800 for a new one.
B. Yes, but I've gotten much better at being conscious of it and work at destroying pencils instead of my teeth.

1. Do you get neck or shoulder pain
Neck, shoulder, upper back, head
2. What type of pillow(s) do you use
Both fiberfill and down king sized pillows
3. What position do you sleep in
Either on my side or my back, pillows piled up so I'm inclined up in bed.
4. Do you sleep with a cpap machine
Bipap
A. If so do you use a full face mask or nose?
Nose mask
B. we're you diagnosed before or after iih diagnoses?
Before
5. Do you have tmj?
No
A. If so do you sleep with a mouth piece.
Don't have tmj but do have mouthpiece - retainer-type device
B. do you grind your teeth
No

1. Do you get neck or shoulder pain
Yes neck pain sometimes worse than the headache.
2. What type of pillow(s) do you use
"husband" or "backrest" type pillow with 2 regular pillows. sometimes one that wraps around your neck like a travel pillow too.
3. What position do you sleep in
I start sitting up propped on my pillows but usually wind up laying down by morning.
4. Do you sleep with a cpap machine
Not anymore, I can't stand it. But the docs say I need to.
A. If so do you use a full face mask or nose?
I tried 3 masks, the nasal pillows worked best but I still couldn't stand it.
B. we're you diagnosed before or after iih diagnoses?
Before
5. Do you have tmj?
No
A. If so do you sleep with a mouth piece.
B. do you grind your teeth
Neither

1. Neck, mostly, but mine cracks too
2. King feather / down two of them
3. Stomach sleeper
4. Nope
5. Was told at my last dentist visit I grind but not sure if they went so far as to say tmj
A. I have one, but I can't find it :)
B. yes

1. Do you get neck or shoulder pain
Neck pain occassionally
2. What type of pillow(s) do you use
Regular pillows - 1or 0 when actually sleeping
3. What position do you sleep in
Side usually
4. Do you sleep with a cpap machine
no
A. If so do you use a full face mask or nose?
B. we're you diagnosed before or after iih diagnoses?
5. Do you have tmj?
yes
A. If so do you sleep with a mouth piece.
no - but my dentist recommends one
B. do you grind your teeth
no - dentist thinks i clench but no evidence of grinding

1. Do you get neck or shoulder pain
It never stops. Base of skull... actually the whole cervical spine and my back across my shoulders.

2. What type of pillow(s) do you use
A combination of one flat, dense pillow and three fluffy ones.

3. What position do you sleep in
I get a better workout asleep than I ever do awake because I'm constantly changing positions. I normally fall asleep on my side with pillows tucked at my belly and back. I sleep belly, beck and sides.

4. Do you sleep with a cpap machine
Need one but can't afford it yet.
A. If so do you use a full face mask or nose? Full
B. we're you diagnosed before or after iih diagnoses?
After, but I've always had disordered sleep. Even as a little girl.


5. Do you have tmj? Yes
A. If so do you sleep with a mouth piece. No, but I own one.
B. do you grind your teeth. Some, but not bad.

1. Do you get neck or shoulder pain
~ Yes to both!

2. What type of pillow(s) do you use
~ I currently have one of those "My Pillows" (as seen on TV). It's okay...a bit better than a regular pillow, but I still have to constantly fluff it at night. I don't do well with the memory foam pillows for some reason. I've even tried a buckwheat pillow, which was way too hard. My quest for the perfect pillow continues...

3. What position do you sleep in
~ usually side, sometimes back

4. Do you sleep with a cpap machine
~ I'm supposed to, but had to turn the machine back in to the supplier. I couldn't use it because my allergies are so extreme, I had problems breathing with it on. I would end up just ripping it off my face.

A. If so do you use a full face mask or nose?
~ The one I had was a half mask thing. The one with just the nose piece wouldn't work. The full face was too much for my claustrophobia. So, it was the half mask that covered nose and mouth. (by the way, that mask would end up putting a dent in the bridge of my nose - ouch!)

B. were you diagnosed before or after iih diagnoses?
~ sorta at the same time as I was put through a heap of tests within a 2 month period of time. It was like, "oh you have IIH, and sleep apnea, and migraines, and possible ms, and a hiatal hernia, and endometriosis, and a liver hemangioma, and, and, and...

5. Do you have tmj?
~ I don't think so.

B. do you grind your teeth
~ I clench my teeth when I'm stressed and have woken myself up with grinding them, but it doesn't seem to be an everyday thing. My dentist hasn't noticed any significant damage to my teeth, so I guess I'm good.

1. rare neck pain, mostly no
2. latex pillow.
3. prone or side. sometimes end up on my back but not consciously
4. used to sleep with BiPAP before I had jaw surgery to try to cure my OSA. it's mostly gone. and my IIH is WAY better also.
5. I was diagnosed with OSA prior to IIH. I'm glad I was because I think it's the only way I would have understood the relationship of OSA to IIH. even before I knew I had IIH I had concluded that something very bad was happening when I slept, and that it was making my brain swell. if I was diagnosed with IIH first I never would have figured out the OSA part as I had to go to Stanford to get diagnosed. I would have ended up with a shunt. I probably had pap before I started CPAP. now I have foreign bodies in my jaw but at least not in my brain. I used a nasal mask, couldn't tolerate the full face mask.
5. yes I HAD TMJ before I had jaw surgery. it made it impossible to use the CPAP because keeping my mouth closed for the nasal mask brought out severe jaw pain. if my mouth is closed without a bite block I will clench. before I knew I had OSA, I would wake up on my back sweating and grinding my teeth. bruxism (tooth grinding) is known to be associated with OSA and has been cured with tonsillectomy in children.

mouth breathing in childhood leads to an increased vertical development of the face (face grows down not forwards) which leads to an anatomy that favors OSA, TMJ, and I think it will also favor compression/decreased drainage of the jugular veins, something recently found to be present in IIH. and so we see all of these conditions together and it may be as much that this anatomy causes all of them together as it is that OSA causes IIH and TMJ. my theory after much study of these subjects.

1. Do you get neck or shoulder pain
- yes, daily and the neck pain is worse. I was told I have neck arthritis and I think I need a neck MRI because there could be csf blockage that Dr's haven't thought to check.

2. What type of pillow(s) do you use
- foam with the neck hump. I've used it for over 5 years.

3. What position do you sleep in
- Side sleeper 90% of the time (left side). My bad head / ear side is my right side, btw.

4. Do you sleep with a cpap machine
- no

5. Do you have tmj?
- no

1. Neck,shoulder, and back pain
2. I have 3 pillows, a regular extra firm. A rice neck pillow, and a round bolster pillows. It just depends on how my neck feels and what way im sleeping
3.usually my right side but for the last 3 years I have been battling that due to my vp shunt is on my right side and it hurts to lay on it thats why I use the neck pillows.
4. No
5. Yes
A. I am supposed to but I tend to leave it out b/c it bothers my teeth
B. Some, mostly I clench hard and suck my mouth dry to the point i will cause sores.
Hope this helps