Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
I DO have pain that comes and goes in weird places, though. In my arms, hip, lower back, shoulders. My neuro says that IIH could possibly create pain anywhere, since it's pressing on all our spinal nerves.
IIH is hard to understand, let alone live with.