Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
I've not been around in a while ~ Hoping all is feeling better then days before !
I so try not to vent and dwell on this horrible DX of ours... I try to suck it up and play normal as if it don't control my life and then as if it starts all over again with out missing a beat ugh ... I do wanna ask ??? I have been dealing with this horrible pain,it started a few days after I had surgery back in Sept. 2010 I had the LP Shunt put in. The pain was in my lower stomach almost like period cramps but 10 x worse doubles me over and brings tears to my eyes.At the hospital it had Doc's and nurses running trying to figure it out. They had a OB GYN come in they did scans,ultrasounds and couldn't find anything.So for 3 yrs now they just keep coming.I seem to think it might be the tubing itself as if it's rubbing something inside causing the pain but I'm not sure.Curious if ANY ONE has any problems of such sort ? Sometimes they come and go and I get a few sharp pains and sometimes they go on and on for a few days ?? The last few mths I was trying to see if it had any patterns to them but can't seem to narrow that down any .... ANY ONE ???
I so try not to vent and dwell on this horrible DX of ours... I try to suck it up and play normal as if it don't control my life and then as if it starts all over again with out missing a beat ugh ... I do wanna ask ??? I have been dealing with this horrible pain,it started a few days after I had surgery back in Sept. 2010 I had the LP Shunt put in. The pain was in my lower stomach almost like period cramps but 10 x worse doubles me over and brings tears to my eyes.At the hospital it had Doc's and nurses running trying to figure it out. They had a OB GYN come in they did scans,ultrasounds and couldn't find anything.So for 3 yrs now they just keep coming.I seem to think it might be the tubing itself as if it's rubbing something inside causing the pain but I'm not sure.Curious if ANY ONE has any problems of such sort ? Sometimes they come and go and I get a few sharp pains and sometimes they go on and on for a few days ?? The last few mths I was trying to see if it had any patterns to them but can't seem to narrow that down any .... ANY ONE ???
http://www.dailystrength.org/search?q=tubing+pain&t=discussion&community=Pseudotumor+Cerebri
Unfortunately DS messed up at the 1st of this year, it will not allow you to view old discussions only ffrom the beginning of this year. You can though, view old convos if you know the author of the topic and look at thier profile posts. I was seriously mad about this.