Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Well, my neuro-opth called me this afternoon and told me that my LP of 31 was still pretty high, but my vision should be protected somewhat, due to recently having optic nerve decompression surgery. He said that the next step would be to decide if I want to go through the shunt surgery or not to help decrease the pressure. He said, personally, he would drag his feet a bit because of all the risks involved. I asked him about the aggressive weight loss my regular neurologist suggested I do, and he said that even though there is some kind of connection that studies have shown that maybe weight loss can help, it isn't a guarantee. He said he is against drastic weight loss and if I could lose about 2 pounds a month or maybe a little more, that would be good. I am scheduled to see him again in mid-April, but he said that he would like me to pray or meditate about what I want to do and if I would like to see him sooner I can. I have to admit, I have no idea what a I should do!! Especially, since I can't take the medication, Diamox. I guess as far as my weight goes, I am probably 40 lbs overweight. Any suggestions??
Krystell, where are you?????? We need your gifted spirit to guide GBF thru a nice n easy way to achieve her weight loss goals.
GBF, Now you need to click your heals 3 times and say "there is no place like Puerto Rico" and hopefully the spirit of Krystell will arrive and guide you thru a painless and easy way to achieve your weight loss goals.
All craziness aside, without Diamox your options start getting limited. Maybe some other drugs like Topomax or???? Come on help everyone!!! Might help but you might also seriously take a look and surgical help (shunt) as Duchess and I have chosen to do.
I am not a huge fan of pray and meditate. I believe in take control of your own destiny because no one else will make it their number one priority other than you!
Good luck GBF. Enjoy the off season and get in shape for the next one.
TJ
I have had weight issues on and off for years and I have had PTC at my heaviest and my lightest. I might suggest simply increasing your activity ie going for walks an making healthier eating choices. I know that sounds rather simplistic, and of course easier said than done...I do know of one medically supervised weight loss program if you fall into the morbidly obese category that you could try, monitored by an MD, dietician, excecise physiologist, and behavior therapist, but it is extreme...very effective, but extreme. Message me if you want details...It will give you very fast results, but it is designed only fo r those who are morbidly obese.
I also can no longer take Diamox, and now take Topamax. Until recently, it has been extremly helpful ( my dose has just been increased, so maybe it will be helpful again) and I know Lasix is also used to treat PTC.
I also suggest trying to find an actual neuro-opthamologist if you can vs. just a neurologist or just an opthomologist. Neuro-opthos are hard to find, but tend to see lots more of PTC cases and when I switched over found the quality of care increase 10 fold.
So, there's my 2 cents.
Lucy
Oh, and The Wii Fit is lots of fun, I mean if excercize can even be called fun lol