Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
I have heard that for some it just randomly happens... just like it randomly appears.
For some a quick short treatment of the right diuretic works.
For some a stent...
For some weight loss (research shows even a loss of up to 8% can be significant enough to decrease the ICP).
Hope that gives some more ideas... Personally... I have been on meds for 2 years, lost 25lbs, (mind you I was thin to start) had botox injs, and still no remission.. I don't qualify for shunt or stent because I don't have papiledema.
I'm sorry that just because you don't have papilledema you can't get shunt. That makes no sense! I'm sorry that you are having to go through so much frustration like having IIH isn't enough.