I have hip pain due to an old dislocation and sciatica ...but probably more recently due to weight issues . Haven't heard of it as a side effect ...yet.

Yeah , i read that the diamox can take the water out of your joints and thats what can cause the pain. i need to look more into it, or maybe email the foundation.

Make sure they are doing a metabolic panel on you at least every two months to check your potassium, etc

Me me! I have been having left leg weakness / soreness for a few months now. I'm only 27 and sometimes I walk like I need a cane it is so uncomfortable. My neuro (who is a headache specialist) says it's not a normal symptom, and just blows me off.

I am seeing a new neuro tomorrow and will not leave until I at least know WHY this is happening. But I'm sure asking for relief is a whole other issue.

I guess in your case, in order to know why you are having pain, you would have to know what type of pain. Is it like a charley horse? How severe is it? I would def. run it by your doctor and get some answers. If I get any tomorrow I will let you know.

I have pain in my hip joints, an shooting/sharp pains through my leg and arm bones. It all dissapeared after my LP and they lowered my pressure to 15. It's already slowing coming back. The bone pain is the worst. Sometimes it's so bad it knocks the breath out of me.

I have had pain in my lower back hip area an legs for a few months I just thought it was me!

ME ME ME !!!! I was just telling my husband that last night i was taking everything for it and i still can't figure out why...if you find out plz let me know.

Hmmm I've jokingly said that the more fluids Diamox takes out of my body and the more weight I lost..the more my knee and hip hurt, it was like the fluid/fat was my cushion.. I am currently using a cane in order to walk. The last 5 pounds I lost, I saw another increase in pain in my knee joints/shin that actually kept me off my feet for days...

Ok, now that's kinda freaky and terrible.
You mean this pain in my hip and leg is down to IIH?!
And, now that I think about it, it came on the same time as the hds did.
My pain is in my hip bone, the ball and socket joint, and down the side of my leg.
I have been to EVERYBODY about this, spent a lot of money, getting no where.
This evening, my husband gave it a good rub with Deep heat, and he said he could feel " knots" in all my muscles. It Did help a lot tho.
I smell like a hospital now!

Last week and again a few years ago, I took Lyrica for it. It did help a lot the last time, this time , I don't think I gave it enough time and I am going to take it again tonight.

fayer, would you give it a try? It does make you a bit sleepy but at least it gets rid of the pain in order for some healing to go on. Cath.

i don't get pains in my hips and legs... yet i hope never, but as for feeling knots in muscels and other pains i really do believe it's iih.

My shoulders used to hurt all the time extream pain my i went to have them massaged out a few times and every time they commented on the knots and got them out sometimes just ot have it hurt again a week later. first thing i noticed when i went on diamox then off it my first complete after my headaches i was getting due to the diamox switch on and off was my shoulders hurt when i wasn't on diamox and thats when i noticed how much pain my whole body is in when my pressure is high. i don't get bad headaches but everything in me goes to heck. from shoulders to my side to my tailbone i get extream pain when my pressure is high.

I have hip/leg pain too! I don't take Diamox though. I only take Topamax. I have pain that starts in my right hip and runs down my right buttock/hip and all the way down my leg. It comes and goes. It is sometimes really painful. I have brought it up with my doctor and haven't gotten any explanations, but it did come on right before my IH diagnosis, so I have often wondered, too if it was related to the IH.

I have severe leg, hip, knee and back pain. The back pain is severe enough that I mentioned it to my N.S. before the shunt surgery. Seems like it has hurt worse ever since the last lp...he sent me for x-rays saying that sometimes the needle can create a growth. Turns out I am completely missing a disc and have a ruptured one below. Don't know if the lp's worsened the condition or not.
Leg pain can be caused by back problems though...worth mentioning to the doc if you recently have had a lp.

I've been told by my NO is that back injuries CAN block CSF from draining and if you have a herniated disc or bulging disc, an LP can make it worse. That's why my Dr. has promised he will NOT do an LP!

Yep, hip/ leg pain here! It's my right, I was not sure if it was due to the "MS" or IH. Very interesting. I am so glad to be a part of this group. It just seems like the things I just put up with, because no one else wanted to acknowledge , seems to not be in my head but a real problem. Figures. Very interesting.

I dont get hip pain, but I have pain in my arms, neck, shoulders, and legs. I have certain pressure points that hurt. Sometimes when the pain is really bad, I feel like something is pushing down on me and that my legs are really heavy. I was in the mall one day last fall and I got stuck. I just couldnt move. This was before I was diagnosed with IIH. Geez, this just keeps getting better.