Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Hey yall!
I know its been a very long time.since I posted but I guess I kind of did.like everyone else once they became symptom free! So I had to come.through and.show some love :). I am noticing how this.group is.growing and that is not a goood thang! Good that were all.coming together to try to get answers.to why were going what we are going through but bad that more n more people.are getting diagnosed daily! This really has me.thinking on what we can do.to bring awareness.out to the world! Thank god for.this.site :) We need to get it out there like cancer and hiv and so on...but it feels.like.no one will listen if it doesn't affect them. That's why I love this group :) we all feel each others pain and know.exactly what one another are going through!...last year when I.was.on here their have been a few people that even tried to reach out to tv shows to bring wearer...has anybody had any success.since I've been away? I guess all.we can continue to do.is to.continue to beleive and pray! Well
On to me, for thoughs who don't know.me, about a year and a half ago I was diagnosed..1/2011 I had my survey ( lp shunt ) which has done wonders for.me! I've been symptom free every since but little headaches here n.there but somethin I can tolerate...on a.scale.from 1-10..I say a 3..and little.minor problems with shunt here n there but i feel.so.good now! I'm now 30 weeks.pregnant with another healthy baby boy and thankfully my pressure stayed the same..never raised! That was my biggest fear one of my other fears is my.shunt comming out my back but let's all cross.fingers that that doesn't happen!
Well I'm.still thinking of all of u guys daily and I do and will.continue to pray for each and everyone of u guys! I had really missed u guys and i.will be checking in more.often, hoping to read some positive post ;)
Hope u all.have a pain free.day ;)
Ps : sorry for the typos and unnessercary periods, im typing. From my phone and it has a mind of its own..plus its almost 5am California time.so I'm too lazy to go back.and correct them hahha,
And cath...where u at! I miss ya too lady.:))
Hope u all.have a blessed day :)
I know its been a very long time.since I posted but I guess I kind of did.like everyone else once they became symptom free! So I had to come.through and.show some love :). I am noticing how this.group is.growing and that is not a goood thang! Good that were all.coming together to try to get answers.to why were going what we are going through but bad that more n more people.are getting diagnosed daily! This really has me.thinking on what we can do.to bring awareness.out to the world! Thank god for.this.site :) We need to get it out there like cancer and hiv and so on...but it feels.like.no one will listen if it doesn't affect them. That's why I love this group :) we all feel each others pain and know.exactly what one another are going through!...last year when I.was.on here their have been a few people that even tried to reach out to tv shows to bring wearer...has anybody had any success.since I've been away? I guess all.we can continue to do.is to.continue to beleive and pray! Well
On to me, for thoughs who don't know.me, about a year and a half ago I was diagnosed..1/2011 I had my survey ( lp shunt ) which has done wonders for.me! I've been symptom free every since but little headaches here n.there but somethin I can tolerate...on a.scale.from 1-10..I say a 3..and little.minor problems with shunt here n there but i feel.so.good now! I'm now 30 weeks.pregnant with another healthy baby boy and thankfully my pressure stayed the same..never raised! That was my biggest fear one of my other fears is my.shunt comming out my back but let's all cross.fingers that that doesn't happen!
Well I'm.still thinking of all of u guys daily and I do and will.continue to pray for each and everyone of u guys! I had really missed u guys and i.will be checking in more.often, hoping to read some positive post ;)
Hope u all.have a pain free.day ;)
Ps : sorry for the typos and unnessercary periods, im typing. From my phone and it has a mind of its own..plus its almost 5am California time.so I'm too lazy to go back.and correct them hahha,
And cath...where u at! I miss ya too lady.:))
Hope u all.have a blessed day :)
Thank you Frstsite :))
I'm one of the newbies, too. I'm glad you came back in here to let us know there is a light at the end of the tunnel
I am so so glad to hear things are going so well for you. You have passed thru my thoughts a lot and jst about 3 weeks ago I thought of you.What super brilliant news that your shunt is really doing its job. And you are so good to come back and let your old friends know whats up as well as spreading some much need good vibes.
In this world that we now live in, good news some days seem in short supply. You have always been a brave lady, and tried so hard to make this all work.
You also , always shared your "love" around. I, always took some!
Keep it all going well and don't let it be so long before we hear from you again! Especially about the baby!
I have been busy,as always. trying to pretend I am not really sick!
My paps finally healed, well almost, sight is better, daily hds but the pain meds help big time. Got a bit down for a bit but pulled myself out of that.
Fighting now with our government to stop a law being passed. Ive become a right hippy, with protests and such!
Who knew my big mouth would some day be an asset?!
I Have meet so many new and interesting people, its amazing.
But my first job will always be here.
Mush love and hugs old friend! Cath.xxx
Im Mallory by the way :) I live in Cali too.