Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
I am thrilled to find ya'll. I had no idea this existed untill I was diagnosed. Noone else I have talked to had ever heard fo it either. I have had this for alot of years. When I was younger I guess I learned to deal with it. now that I am old and slow, it caught up with me and hit me hard. I was diagnosed a year and 4 months ago. Right now I am taking meds for it. My neurologist says that's all she can do. She has never mentioned a shunt. I have had 2 LPs. I can't say what the pressure was. She told me I just did not take it in.
I am starting to have alot of trouble with my eyes. I do work. I wonder how much longer I will be able to do it. This is my only income so don't know what will happen to me.
Just loose weight. Just loose weight. I wish I could.
Sorry WOW this is one heck of a way to intorduce myself. I have needed someone to talk to for a long time. That is someone that knows what I am talking about.
Does anyone have scalp problems? I am about to die.
I guess I better jump off here. I feel bad about all my complaining.
Bye
Is there spell check on this?
I am starting to have alot of trouble with my eyes. I do work. I wonder how much longer I will be able to do it. This is my only income so don't know what will happen to me.
Just loose weight. Just loose weight. I wish I could.
Sorry WOW this is one heck of a way to intorduce myself. I have needed someone to talk to for a long time. That is someone that knows what I am talking about.
Does anyone have scalp problems? I am about to die.
I guess I better jump off here. I feel bad about all my complaining.
Bye
Is there spell check on this?
We ,and now you, are in this mess together and we help support, encourage and try to share our findings with each other. We are always there for each other, in any way we can, and we welcome you to this "club".
Nicole is so right about the older posts. take some time out and read some.If you have any questions , fire away. we will try our best to help. Is there any thing in particular you want to know?
I have been sick for years, diagnosed two years ago. Meds didnt work so I got a VP shunt, that didnt work either! ( sometimes they are not the answer...)
Now I have sky high blood pressure to add to the ever growing list. But thanks to all here, I over came my dislike of going to the drs and the possiblility of a stroke!
You are one of us and we will do all we can to help. If you feel like crying, laughing, or venting, we all understand. we all do it at some point to. I hope you will find this site as good as the rest of us do. Cath..
As far as the losing the weight thing, well s**t, if it was that easy I would have done it a long time ago! My DR said even a small amount would help, well after 20 lb it hasnt helped on bit, I continue to get worse.
Stay on top of those eyes, our sight is precious!
As far as the scalp thing, mine is so tender and sore, it hurts to brush my hair and I cant wear it up a lot anymore, I know a lot o others on here have the same issue.
As for the spell check, I cant spell AT ALL, so I type everything in Word and spell check, then copy and paste to here. I realize this is a bit neurotic but I suck so badly at spelling and a lot of times I am not even close!
Hang in there,
Emerson