Hello. I'm new here. I had a VP shunt placed in December and had to have a revision shunt placed in March of this year. Before putting in the VP shunt, my doctor tried three stents in my brain. After the stents replaced I had some relief for a few weeks. But then I would start having the pressure headaches again. My doctor said that even though the stents were keeping the vessels open, other vessels were shrinking. That’s when he decided to put in the VP shunt. Again after VP shunt placement I had a few weeks of relief. I started having pressure headaches again so went back for an adjustment. And, once again I had a few weeks of relief. Now the headaches are back again and I’m wondering if the CSF is adjusting for the VP shunt and creating even more fluid. Sort of like VP shunt dependency. It just seems like I can get no relief. Has anyone had this issue, or has any advice? I also suffer from migraines but generally I can tell the difference between a pressure headache and a migraine. I’ve been referred to the Jefferson headache center in Philadelphia but I don’t know when I’ll get an appointment.
My Neuro-ophthalmologist keeps insisting my headaches are unrelated to my IIH. I was taken off Topamax Friday and put on a blood pressure medication (even though I do not have high blood pressure) to help control the headaches. I’m starting to feel like a guinea pig with all the meds they are testing on me. Should I get a second opinion?
Is it normal to have back pain with this. I never know if it’s just my back hurting or from this crazy disorder