Way to go, Baby Girl! It is ALWAYS good news for all of us when one of us is feeling better in even the smallest measure. It all counts, and you are as important as anyone else here. Please remember that!

What a wonderful accomplishment, btw, r u out of the hospital yet? I hope your not feeling any negativity or anything because of the other post. You should always share your good news, concerns, fears, questions with the DS family. I only wish everyone would come around a bit more, i am only hopeful that the one's that dont are experiencing good things.

Again,
Great news

Congratulations, any good news is uplifting to those of us that cope with this illness. Keep up the good work and sharing your experiences. In sharing you would be surprised how you can help someone.

That is great news Heather! I'm very happy for you! All progress is good progress :) Keep up the good work, and this place loves good news!
Take care Hun,
Amy

I should have read this before replying to an old post. So glad to hear that you're doing well!

Wooohoooooo! Congratulations! What wonderful news. Keep going - you inspire me.

Thanks all. :)

Mary - Yes, I am out of the hospital. I'm just slow to respond because I really am not bouncing back the way I wish I was! I was doing so dang well before and I just have headaches every day and I swear I feel terrible everyday now. My head hurts so bad. :( I don't really know what to say about it because it's not necessarily like what I had before because I had constant eye pain before where as now my head constantly hurts and sound...oh my gosh, sound hurts my head so bad...sound never, ever bothered my head before. And as soon as it gets dark out, my head kills me. I just do not know what to do. I feel like such a mess! When I was in the hospital, they had to lower my seizure medicine because my level was double what it should have been, but they increased my Topamax from 200mg a day to 300mg a day because that not only would help with the headaches, but it is an anti-convulsant as well...so it covers too bases. But I just hurt so bad. Obviously I am continuing to fight, but you know it's hard at times!

Anyhow...it's not really effecting my appetite or anything like that, so that's a good thing! That's always another sign that it is my pressure...so I'm so confused, lol! Maybe I still need more time to bounce back...I'm hoping!!!

I hope everyone enjoys their Thanksgiving tomorrow, as best you can. This is the first one in two years I am not going to be stuck lying in bed, so I will. :) I am going to spend it with my family...then meeting with my best friend and going to her house to stay with her until Sunday! She lives out of state so for me, it does not get better than that! Laughter is always a fantastic medicine for me! Until I laugh so hard my head hurts! Then you know you laughed too hard! :)

Happy Thanksgiving, all! :)

Be careful, Dear One, not to push too hard to do too much too soon. I know you desperately want to feel better again, and I applaud your sheer will to have some normalcy. I'm behind you all the way! Just take it one day and one step at a time, and let it be okay if you've hit the limit of what you can do in a day. Go have fun!! :)

Thank you, So_Up. I am trying not to push it, but she is such an important person to me and I enjoy her company so much that when I am around her, I just forget about my pain until it is too late...and then, well, it is too late!

I am taking a little bit of medicine with me in case the pain gets too bad. I have not been taking anything except for Advil PM. Not even Advil during the day...just dealing with it. (I mean besides my Tegretol and Topamax) So if it gets too bad, I will have a little bit of help to kick it out of me. Plus, she knows that I tend to not say I am hurting even if I am...so she will not let me push myself, even if I want to. She is good for me. She will also know exactly where all of my medical information is in case anything happens.

Have a great holiday, if you do celebrate it. Enjoy it as best you can.

Congrats I love hearing good news on here!! How did you lose the weight? Not sure if I missed that part or if you're sharing.. Happy Thanksgiving!

For one thing, my doctors have put me on Topamax which has helped. Secondly, I cut out a lot of sugary things breads and stuff. And the only things I drink are Smart Water and if I want flavor, I drink Propel-Zero...specifically, for myself, the Kiwi-Strawberry Propel-Zero. :)

It's helped so much for me!!!

Enjoy your Thanksgiving!