Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
I know the answer to this, but I just want to see how many others notice this and to what effect high sodium affects you guys.
My daughter talked me into buying Bulk "Movie Theater" Popcorn from the wholesale club here last week. I have to say it's the best popcorn I've had out of a microwave. But I've noticed it's making my symptoms so much worse, so it has to be the salt causing fluid retention in the CSF, but wow.
My LP shunt isn't working and I'll be getting my VP shunt at the end of this week, so I'm looking forward to that.
On another note, just wanted to point something out to others: The reason my LP shunt isn't working much is because I have spinal stenosis, which is a narrowing of the spinal canal. For me, this is a congenital problem, but I also have a few herniated disks which are impinging on the spinal cord itself, thus making it harder for the CSF to flow down to the LP shunt. Thus, my LP pressure was still elevated at 32cm 2 weeks after my LP shunt was placed and opened.
I'm praying to God this theory of the spinal stenosis is true and the new VP shunt works for me. Anyone else with Spinal Stenosis ? Anyone else have a LP shunt with continued high pressure ?
My daughter talked me into buying Bulk "Movie Theater" Popcorn from the wholesale club here last week. I have to say it's the best popcorn I've had out of a microwave. But I've noticed it's making my symptoms so much worse, so it has to be the salt causing fluid retention in the CSF, but wow.
My LP shunt isn't working and I'll be getting my VP shunt at the end of this week, so I'm looking forward to that.
On another note, just wanted to point something out to others: The reason my LP shunt isn't working much is because I have spinal stenosis, which is a narrowing of the spinal canal. For me, this is a congenital problem, but I also have a few herniated disks which are impinging on the spinal cord itself, thus making it harder for the CSF to flow down to the LP shunt. Thus, my LP pressure was still elevated at 32cm 2 weeks after my LP shunt was placed and opened.
I'm praying to God this theory of the spinal stenosis is true and the new VP shunt works for me. Anyone else with Spinal Stenosis ? Anyone else have a LP shunt with continued high pressure ?
when I first got sick years ago, but at that time did not know what the problem was, one of the things I stopped being able to eat was microwave popcorn. the other was soy sauce. anything even naturally fermented contains MSG even when it is not on the label. I already knew that salad dressings and soups were out. not to mention Doritos, etc.
I hope all goes well with your new VP shunt! Sending well wishes your way.
I'm an exception. A side effect of my Diamox is blood pressure that gets too low and sodium levels that are too low. That makes me dizzy and sometimes pass out. So my kidney doc tells me to eat salt. He also has me drink lemonade to help manage the acid level in my body and to prevent kidney stones. It's counter-intuitive but lemonade (acidic) actually makes the body more alkaline. Add in the potassium citrate tabs and there you go.
I love my nephrologist. His prescription for me: a big glass of lemonade and salty snacks every day! Okay, and four big potassium horse pills.
My new VP shunt is working great after having 6 revisions of an LP shunt so I know you will be so much better! You are in my prayers.