Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Good Morning,
I'm new to this forum, I have been looking on information on taking Diamox and being pregnant. I was diganois with Pseudotumor Cerebri last year. This year In april was taking off become things were looking great. Weeks later I found out I was pregnant.....very exciting moment in my life. I'm now 26 weeks and enjoying every minute of it. I'm 31 years old and this is my first pregnancy, I thought I couldnt have children because I had never become pregnant. So I called my unborn child my King from God. Recently my Optometrist said that the swellen of my optic nerves were back to the way they were last year:( So to make a long story short my OB and the Maternal Fetal (high risk) doctors decided that the baby would be fine if I were to get back on Diamox. Last week I was given the medication but I refuse to take it for fear of hurting my unborn child. My OB explained to me that the baby will be fine and they will monitor the amniotic fluid. For some reason I'm still scared. I began the medication on yesterday but I still fear something happening to my son. I'm scared and I cry about it everyday. I know I need to be healthy to raise my son but I don't want to put his life in danger either. I don't get much from the internet because Diamox is classified as Class C. I would like some advice from anyone on here that has experience the same thing or even know something on the effects to my baby while on this medication.
Thank you for listening....well reading :)
Terrified Mom-to-be!
I'm new to this forum, I have been looking on information on taking Diamox and being pregnant. I was diganois with Pseudotumor Cerebri last year. This year In april was taking off become things were looking great. Weeks later I found out I was pregnant.....very exciting moment in my life. I'm now 26 weeks and enjoying every minute of it. I'm 31 years old and this is my first pregnancy, I thought I couldnt have children because I had never become pregnant. So I called my unborn child my King from God. Recently my Optometrist said that the swellen of my optic nerves were back to the way they were last year:( So to make a long story short my OB and the Maternal Fetal (high risk) doctors decided that the baby would be fine if I were to get back on Diamox. Last week I was given the medication but I refuse to take it for fear of hurting my unborn child. My OB explained to me that the baby will be fine and they will monitor the amniotic fluid. For some reason I'm still scared. I began the medication on yesterday but I still fear something happening to my son. I'm scared and I cry about it everyday. I know I need to be healthy to raise my son but I don't want to put his life in danger either. I don't get much from the internet because Diamox is classified as Class C. I would like some advice from anyone on here that has experience the same thing or even know something on the effects to my baby while on this medication.
Thank you for listening....well reading :)
Terrified Mom-to-be!
MandyRee
Congrats on your pregnancy. yayy! I can completely understand your fears. However, we've had a couple of women from this forum take diamox throughout their entire pregnancy, and their babies are perfect. (one lady- I am positive of) I really hope they show up an reply. I can only imagine your fears, and if your instincts are saying "don't do it", that is very difficult to overcome. I sympathize with you. I think maybe your anxiety is operating your instincts right now. Which is completely understandable; you're concerned about your vision and your babies well being at the same time. I think- You have to make up your mind to trust your doctors know what they're doing. I don't believe they would ask you to do anything that could potentially harm your unborn child. I know they are not asking you to do anything that hasn't been done before. Another thing you might consider is that very young children take high doses of diamox daily. (not sure if that's helpful either)
I hope this helped you sort through your fears a little bit. I hope I didn't come off as lacking compassion. I truly feel your pain/fears. I have two children and I know what you're balancing in your mind right now. Our children always come first. But you must believe it is safe for your baby, and this is the only way you both will be okay. You certainly do not want to put your sight at risk. Baby needs mommy to see, so you can take good care of him/her.
I hope you can find some peace with taking this medication. Know that it is the only way to make sure you're both being taken care of. Baby will be fine.
p.s you're already a wonderful, caring mommy.
Big big hugs to you.
Betty
Taking it one day at a time,
Franchesca