i take oxycodone slow release 20mg and oxycodone 5mg fast release for breakthrough pain and indocin (antiimmflamtory) I have never had a rebound headache. I'm sorry that you have had one... not sure if this helps. I was on percocet on and off for a year.

mommie, so sorry to hear you are having such a rough time.
I have to ask, as I have just been thru this whole mess of rebound hds, who says they are?
What are they saying about them?
Are you taking Dilaudid 2mgs daily? More often? Is it not manging your pain?

This is quite a strong pain killer and it should work, but I have found, with a lot of people, you may have to mix it up a bit. Or try something, not so strong.
I am taking Solpadol which has 30mgs of codeine per tablet+ 5oo paracetamol.But, the strange thing is, I cant take two of these tablets as I get a worse hd! I take another brand, for my second tablet, Synodal, which has only 10mgs of codeine 5oo paracetamol.
So, its a total of 40mgs of codeine+1000 of paracetamol.

My neuro, altho not completely happy I am taking this understands that it is the only way I can have a quality of life.
It was more than suggested that I had a drug dependency and was having rebound hds. To this end, I agreed to a lp.Opening pressure was 32! Hah! That shut them all up for awhile.


Like so many of us, I get break thru pain at night time. It would wake me from my sleep. I started on Amitriptyline 50mgs, last year and it did really help.
As of late I have had to up it to 75mgs and still working. ( Most of the time).
I take it 2 hours before bed and I seem to sleep the better for it. I am currently on my 4th night of full sleep.
This of course, has a knock on effect on my daily hds , as I can get by till the afternoon, most days, with out pain meds. If you are not sleeping, you have no energy to fight the pain.

Be warned about coming off a strong pain killer like , Dilaudial. It is very difficult and should be done gradually with the support of your neuro. You cant just give it up. That's crazy! And too hard. Its like a drug addict going cold turkey.
You need to find some form of pain relief , that doesn't involve codeine( the culprit)that works for you, and slowly, come off the Dilaudial. We will be here to help and support you thru this.
Don't you dare feel bad about this! After all, it was the dr that first prescribed it for you. Now, they have to help you.
Good luck with your apt! Cath.

My neuro says morphine and morphine-derivitive drugs increase CSF pressure, so they may not be the best choice for IIH. Doesn't leave much in the pain relief department.

I am sure it is not the greatest but I liked nucynta. It has been on the market about two years. I have not noticed rebound h/a's with it. I take 50 or 100 mg depending on the h/a. Good thing besides the no- rebound is that it does not constipate you. Bad thing is that it takes about an hour for me to know it is working well. I don't like the diluded. I am on it now after the surgery. I noticed rebound h/a's with the oxycodone. The lortab worked ok but I guess the Tylenol can cause the rebound h/a's. Good luck and I hope you find something that works for you. Everyone is different and can react different to different meds.

Thank you everyone !
Hi Cath,it was my Neurosurgeons nurse that told me prior to replacing my Dilaudid to oxycodone and said that most or all of the narcs on the market would do this to me ! I have not yet expirenced a rebound HD untill taking this med it was very different the the high and low pressure HD I new and felt this within the first few hours after taking the oxycodone,it was worse then I imagined !!!
YES I take the Dilaudid 2mg every 4 hours for pain
( 1) It helps ease the migraine pain .
( 2 ) I have other pain issues that are not DX'ed yet .
I was DX'ed with Fibro 2 years ago.
I have alot of un related pain also ( knees,feet, wrist,shoulders, fingers ) all painful mostly daily its been this was since Feb. 2 this year and has yet let up. Somthing Autoimmune is going on.
My ins. sucks ! They have been doing test on me . I strongly believe it has some thing to do with or that involves my muscles and tendons altho. my knee pain feels like bone so I'm just not sure these ( FLARES ) or whatever they are last for months,I might feel ok for a few days if im lucky and then back into another.I told you I started this ( FLARE ) FEB 2, I remember feeling ok for about 3 days from the last ( FLARE ) to this one and the last one lasted 4 1/2 months also .. This has been going on for the last 3 years..

So yes Dilaudid is a very strong pain med and I've been on this since after my lp surgery in Sept last year so I 've benn on it a while and its just not helping anymore it does ease the pain alittle and I shouldnt expect any miracles and yes he did put me on this !
So I do expect him to help me through this ,its just sometimes he makes me feel like I'm not doing something right or I'm just not sure there are some visits i just wanna tell him to shove it !
however I cant hes the only Doc. in my town that takes care of this so my hands are alittle tied !! ON MOn. the shunt will be moved and I'll have to see whats going to happen,
Last time I went into low pressure HD almost right away
???? How long should I tough it out to see if its going to level out before calling him back and telling him it didnt work he is leaving town on the 20th and hes the only one that can move it ,last time I had to lay flat for a few days untill he was able to move it back up to 100 where i am at now ??? Thanks again

any narcotic will cause physical tolerance and rebound can happen from any pain killer. i have read that narcs do increase the pressure.

I take maxalt for headaches as they are usually migraines. really, triptans work the best for migraines because the work on the cause of the migraines.

I take Opana ER as needed (can be every 12 hours) it is very strong, and on the rare occurance I have breakthrough pain I take Dilaudud.

I got the med OPANA from my pain management DR. Seek a good one if your neuro doesn't take care of business, pain management doctors know lots of ways to help pain, not just pills.