Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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Base of Skull pain

HungryAngryLonelyTired
HungryAngryLonelyTired
I've had Fibromyalgia 7 years and the tender point at the base of my skull that goes across from bone to bone has always hurt. Now since my ICP 5 stay at the hospital and migraines the last two months it has gotten worse and worse. Its so hurtful and sickening. Have I been misdiagnosing myself wrong??? Has anybody else woke up to sickly pain at the base of your skull and then it develops into a horrible migraine???
Sophiasmom06
Sophiasmom06
the big clue is in the fact that you say you WOKE UP with this. what is happening in your sleep?

did you see my reply to you here:
http://www.dailystrength.org/c/Psuedotumor-Cerebri/forum/17046170-can-chiropractor-help
?

http://www.ncbi.nlm.nih.gov/pubmed/?term=avram+gold+fibromyalgia

http://www.ncbi.nlm.nih.gov/pubmed/?term=jennum+sleep+apnea+intracranial
Sophiasmom06
Sophiasmom06
last link didn't copy right:

http://www.ncbi.nlm.nih.gov/pubmed/?term=2914475
HungryAngryLonelyTired
HungryAngryLonelyTired
I read your info and comments over and over. Im open minded. I'll go back to the GP and see her before the Neuro and speak with her for a Sleep Test. I also have 2 cyst on my thyroid so my whole neck is hurtful. Thanks so much for replying. It means so much to know someone cares. Is the Sleep apnea test the only test I should consider????
SeaSprite
SeaSprite
I'm having trouble understanding your description of where your pain is. Sometimes it's as simple as "sleeping funny" on something. Sometimes not.

I have pain where the V is at the base of the skull. It's where a majority of my headaches start. I don't have Chiari.

Please share with your doctor. Where your headaches start may be a clue.
Sophiasmom06
Sophiasmom06
well make sure it's a very sensitive sleep study. like a home study would be useless. you want to be titrated to reduce all nasal flow limitations. I would go to the best sleep center in your state, and travel if you need to. the only place that could diagnose me was Stanford. I get on a plane when I need a sleep test. I think that CPAP is a problem and most of us with IIH can only tolerate BiPAP, so make sure they don't waste your time if at all possible.

I suppose that forward head posture related to the OSA could be causing a different sort of neck pain other than that caused by ICP. I would ask your neuro about this. baseline tests for all IIH patients ought to be brain MRV and neck MRV, but these don't necessarily relate to the symptom you describe here.

like I think I said in a different post, if your thyroid cysts are that big I would consider getting that removed. my concern would be the mass in your neck could compress your jugular veins. you would think any compression would be seen on a neck MRV, but I am suspicious that as with many other things, we don't really understand what the normal ranges ought to be.
HungryAngryLonelyTired
HungryAngryLonelyTired
SeaSprite, Im so sad and sick, from the base of my skull - the bone on one side to the other is "feverish-hot and tender" Ive taken hydro and fioricet around the clock since Friday afternoon. If I rub or touch this two inch thickness it will get alot worse fast. And yes it is where alot of my headaches/migraines start. but make no mistake. This is sickly pain. The opposite of a pressure headache.
SeaSprite
SeaSprite
It sounds like you need to take that to your Dr. asap.
Sophiasmom06
Sophiasmom06
you make it sound like a skin infection