yes dear Vicky, i get these symptoms all the time! and there are no meds that can ease my pain! i'm sorry ure in pain too! hope u feel better

Hi Vicky,
I get most of my HA at the back of my skull and around my ears too. It's not fun stuff. Your DR. needs to know that you get the nausea and about the HA...hopefully you've told him.

I saw my first neuro last month and told him about the pain behind my ears and he shrugged and said that isn't a symptom. Yet since my first LP I haven't had the pain...go figure huh? So I have another appt with another neuro next week.

Hope today is a good day for you!
Hugs
Joni

I posted about that a week ago . Does it get worse when you lie down ? Then it is most likely a high pressure ha . Do you wake with it ? Same .
I put an ice pack on the back of my neck and that seems to help some .

Vicky,

I have had HORRID headaches with this. On what starts with the Left side of my head, then works to the back, right side, and stays there. It does get so bad sometimes, that it is excruciating. I just recently went to the full dosage of the generic version of Topomax recently 200mg since nothing was really doing it for me. Still comes back during the day time, but I only started that on Wednesday.

Hope yours get better. I have had it not necessary in the same spot, but close to it....

Mine must be due to that, cause when I try to lie down to get some rest some times I can't sleep because of it....that answers that portion....:(

John

First of all I wish you weren't in that kind of pain! I have those HA on what seems like daily basis at some point or another, I have become used to them. I love when my husband says why don't you just take some Asprin, maybe it will work this time.. Gee why didn't I think of that!!?? lol At least he tries.

Twilight- I am like you not found a med yet to help.

Thanks everyone !!!! I too have the HA every day , but these r different!!!! When I have the lightening bolt (as I call it) on one side those r more bareable but when it gets in the lower back of the head it is so bad I can't bare it and I feel like someone is trying to rip my eyes out of my head !! And every least little movement causes me to be sick!!!! I also thought these r caused by when the pressure is the highest!!!!! I really luv this group it helps so to have someone with same experiences!!!!!

I get these too. I sit very still with a heating pad on my shoulders and neck and I take muscle relaxers. sometimes they take the edge off it. Couldn't live without the heating pad! So sorry that you have so much pain, I so know how aweful it is!

YES! the back of my neck is tight and I always have nausea. The meds they give me don't work and don't take the HA away and the nausea pills just make me sleepy...but what are you going to do I guess. I have to mention it to my docotor again...
I see them next week. Hopefully a new migraine med will work.
Mandy

I don't know about that I have tried every thing under God's little blue moon and nothing works!!!! And same here on the nausea meds !!! Unless I want to be sleepy I can't take em!! Dr prescribed the nausea patches but my insurance won't cover!!! Seeing neuo surgeon on Tuesday hoping and praying for good results !!!!

You described my worst headache exactly, with one exception. During my worst headaches I also have one random tooth that hurts so bad, I can actually feel my pulse in it. It is always the same tooth. I have been to the dentist three times just to make sure there was nothing wrong with the tooth or my jaw. I know wierd right.

When they are that bad, I try to stay as still as possible. Some times I will get stiff from sitting like a statue for so long.

twilighta- I forgot to stay. I take OPANA ER(extended release) and dilaudid for break through pain.

If I take the OPANA as soon as I feel my headache coming on it brings the pain down form a 9 or 10 to a 3 or 4.

I have to take phenergan before the OPANA in order to tolerate it.

EEmerson I can also count heart beat but I can count mine in my ears !!! The pressure is so bad in ears sometimes I feel like it's going to pop my hearing aid ear molds out!!! Weird uh !?!?

Sounds pretty classic... I thought I was getting arthritis in my neck before I was dx'd. I would describe my ear pain like my brain was trying to escape. And my eyes would hurt... and it would hurt worse when they were closed. It's like your skull can only contain so much, and wherever there's an opening or an edge, the contents try to squish out.

I'm very happy to say it doesn't hurt like that any more. Don't get me wrong, I still have a headache all the time... it's just not that bad anymore.

Hang in there

i too get & continually have this kind of headache, right now as we speak. i feel like hell. i was given lortab when i was first dx'd & only take if i absolutely have to. i took one today so i could manage to get thru work....hmmmm, well, it wore off within 2.5 hours ---groovy eh? my neck anymore everyday is so stiff and sore that i can't hardly move it somedays. sorry you too are experiencing the same crud.
G