I recently had the bilateral optic nerve sheath decompression surgery to treat my Pseudotumor Cerebri symptoms (Dec 30). Well, I had my first lumbar puncture in September 2008 and my level was 38 (21 was the normal range). Before the surgery, I tried the Diamox and my body couldn't handle it and my doctor said I was considered a "medication failure" and I couldn't take the medicine usually given to those with this condition. I went back to my surgeon last week for my six week check up and he now wants me to get another lumbar puncture because he said that my optic nerve is not as flat as he would expect it to be right now and it hadn't changed since the one week post-op visit?? I'm confused.. I also starting having neckaches again and a little bit of splotches in my right eye again. He said he wants another LP done because that is the only way they can check my pressure which I know is true. I just didn't think it would be so soon....I am really dreading the LP, especially since I ended up having to have a blood patch done the last time I had it done...I am so nervous...and I am so tired of having to deal with this...I was originally diagnosed in July 2008...
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