Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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soccergirl78 08/06/2015

Another LP today. My pressure was 22. They are now checking for MS too :( hope everyone is doing good

Sophiasmom06 08/06/2015

mine was 22 and 23. I was sick as a dog. I got better after it dropped to 14. don't let them tell you that is normal. it's NOT.

soccergirl78 08/06/2015

I've been sick for a month or so.

soccergirl78 08/06/2015

I'm sorry you've been sick too. I hope you feel better as well.

mary1973 08/06/2015

Hey you, glad to see you, I'm so sorry you're feeling bad. Just wanted to mention every single IH symptom I had is gone, taking Keppra being treated for Epilepsy since I finally had a big bad seizure.
Sophiasmom is so right on with those pressures you have being too high, if their taking you down to????? and you're feeling better then they need to pay attention, and the heck with their criterion

mary1973 08/06/2015

They're not their, darn autocorrect.
I'm turning it off, hehe

soccergirl78 08/06/2015

Hi Mary,

I'm sorry to hear you are having seizures.
Some of my my symptoms were relieved by the LP.

Sophiasmom06 08/07/2015

yes, show them this paper and tell them to treat your PTC:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3899735/

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