Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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randiew123 07/28/2015

I haven't been on here in a long time. Thought I would drop in and see how everyone is doing. I see Mary and Sophiesmom are still here. What about Cath from Ireland how is she? I see soon familiar names on here. I'm ok still pretty much the same.

Sophiasmom06 07/30/2015

hi randie;
welcome back! I hope your financial situation is better now??

I have been pretty good in terms of IIH but I recently went off caffeine and that gave me a couple of bad days. also trying to decrease my progesterone dose, that might have caused some of the problem. it's always something. never perfect but oh so much better since the jaw surgery.

mary1973 08/04/2015

I now have epilepsy, wtf. How are you, missed ya, nope Cath has been gone a very long time now.

randiew123 09/21/2016

Mary1973 when you say Cath has been gone for a very long time did she pass away. It is good to hear from y'all. I spend so much time on Facebook. I'll try to remember to stop by here.

randiew123 09/24/2016

...

Sophiasmom06 09/24/2016

hi Randie, I don't know the answer to your question. this site is not very active now, since they changed it over. I wish they left it the way it was.

randiew123 10/14/2016

Where has everyone gone? To talk?

randiew123 10/14/2016

Oh Sophiasmom I have my disability and Medicare now so my finances are better. I'm on a few groups in Facebook. I wish all of y'all were there. jaw surgery what was that about?

randiew123 10/14/2016

I liked this better the way it was.

Sophiasmom06 10/16/2016

https://www.ncbi.nlm.nih.gov/pubmed/27370206

published it.

idk where everyone went.

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