Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Seems like they increased your dose alot at one time. I would they they would of done it in smaller increments? Like up to 750 then to 1000.
I'm sure more will post with more helpful information. Just wanted to let you know I feel for you cause I know how painful this is for my daughter.
Good luck, I hope it subsides.
When I was taking Diamox, I had terrible tingling all the time. It made me very clumsy.
But I got used to it. Also, my hands and feet were always cold.
Two things that really did cause a problem were,I had a history of an ulcer and the Diamox kick started it again. I was taken an anti acid drug, Protium, and still am.
I also had so many kidney infections. About one a month. When I came off the Diomax , the infections became less and less until, now, and I am fine.
It takes at least 6-8 weeks to really get the hang on the drug. But it does get easier.Even tho I had symptoms, I could live with it.
Just bear in mind, it will save your eye sight.
You will get plenty of sympathy here, from us about it all! Cath.
Molly
Eat soft foods and take a bubble bath :-(
Watch this close, that is exactly how I felt when I went up to 1000 a day. Even the same words kiser to describe it lol.
By day 3 I had blood in my stool and o had started coughing up blood as well. But that was Friday morning of Christmas weekend and I didn't want to "bother" anybody.
By Monday the bleeding had really gotten out of hand. well you get the picture. So be very carful and communicate with your Dr and you support team
Lifting you in Prayer
Sher
Like Sher, I suffer from anemia.I seem to have it all the time but it gets so much worse when I am on Diamox.
You also need to keep an eye on your liver, kidneys and hormone levels.
Diamox kicks the ass's off potassium, so you need to keep an eye on your levels.
Some drs can be very remiss about this. You must take this job in to your own hands, and remind them to do a blood screening regularly. Cath.
I had to see a GI doctor over the Christmas break for GI bleeding, he & my rheumatologist took me off of Arthrotec as the probable culprit..
Now, I am going to insist that they figure out if the recent bleeding and severe stomach pain is from the Diamox...
I don't know what to do, but my scope isn't unti 6 more days, and I don't know what kind of damage it could be doing to my insides.
Why does medication usually seem to cause more problems than the the ones it helps??
I must very sensitive to drugs, since every new medication makes me ill.
I've also had diarrhea and heartburn, but was already on an anti-acid drug for acid reflux, so it is hard to tell what is Diamox and what isn't....
Hope you find some answers soon!