Prolactinoma Support Group

A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. Prolactin stimulates the breast to produce milk during pregnancy. After delivery of the baby, a mother's...

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Endocrine System
/ Prolactinoma Support Group

Weight gain

cg1974
cg1974

hello. Wondering if anyone can help as feel like I'm going crazy. Diagnosed with a microademona about 18 months ago. I have elevated prolactin, no periods, no sex drive and have gained 2 stones in weight. I literally look in the mirror and don't recognise myself. I feel like I am losing my mind. My endo prescribed cabergoline but I have scared myself to death reading the side effects and dare not take it. I am so desperate to feel like my old self. Hard enough to accept that my fertility is gone and that I can't give my 5 year old a sibling and that libido has completely disappeared. On top of that I feel so fat and unattractive. Anyone have any advice? Thanks so much x 

siobhand
siobhand
hi! i was diagnosed with mine in 2014 and they first prescribed me with cabergoline when my prolactin levels were at 5000. I didnt read the side effects at first but after about a week taking it i started to feel so miserable and had migraines every day and realised it was the medicine. I spoke to the Dr and she put me on different medication and i was on that for about a year but my levels kept going up instead of down so i was put back onto cabergoline and honestly after taking half a tablet twice a week for about 2 weeks and eventually going up to the full dose has seriously helped the side effects i feel happier and more like myself. I have been on it for a year now and barely notice any side effects. As for the weight gain, i feel your struggle! no matter how hard i try i can't seem to loose weight but next time i go to the Dr im going to ask to get my thyroid checked again to see if thats the problem. I know i haven't given you much advice but just remember your endo won't prescribe you something that could potentially be dangerous for you. Hope i have helped even just a little bit x
Eyc
Eyc
Hi
I also have a microprolactinoma. I have tried medication but can not handle the side effects. I have low bone density dur to the high prolacton and low estrogen. I have struggled with my weight. No matter what i do i cam not loe any weight. I excersise and eat healthy. A naturopath told me i eat reallu well and should be losing weight but it jiat doesn't happen. I hate it and i do not feel lile myself at all. I feel disgusting.
I will be having surgery in about 3 months to remove this fam thing. I am really interested to see how much weight comes off.
I have gained about 12 kilos in the past 3 years. It's killing me.

Hopefully you'll find a way to control your prolactin levels. They are responsible for the weight gain