Hi Doug! Yes, surgery was my treatment option to remove my pituitary adenoma back in January 1997. At that time that was my only option since my tumor was 8mm (size of a green pea) and my neuro-surgeon suggested this would be my best option since it was on the verge of breaking through the gland and this would only cause more problems within the hypothalmus region of the brain.
It did work, however I was told that there was a possible chance it could return within 5 yrs from the operation. Within 4 1/2 yrs after the surgery I began to have symptoms again and my prolactin reading increased outside the normal range. I was then sent for a MRI and found no growths yet my readings increased. From that point on to this present date I have been diagnosed with hyperprolactinema, overactive pituitary gland that release prolactin. My treatment options now, are Dostinex once a week and 2x a yr follow up appts with my endocrinologist and yearly MRIs.
My only issues with the Dostinex are the side effects. I found it caused me to gain weight, a bloated appearance and thus I elected to come off the medication only to cause an increase in my prolactin. So, I have to start again. Otherwise, I find being vigilant with you body, symptoms and continuing with follow-ups is the best option to staying on top.
I hope that helps provide insight to this discussion.

Best to you and all..
Elena xx

Hello Missy- Have an appointment on the 20th the discuss the results of the latest MRI... at least I know the tumor has not grown since 2005.
The regrowth is not a shock to me, but this is unknown territory for my husband. We did not know each other back in 1978 when I had my first tumor.
I am attempting to give him a quick education into the mystical world of endocrinology and pitutiary tumors.
I have not informed my parent as yet, and do not think it would be wise to do so. They are both 87, suffering from a listing of medical issues and in a nursing home.
I just don't think they would comprehend what is going on. The only thing they know is that I am having a visual problem now. That seems to satisfy them as to why I am unable to visit them.
I would appreciate any input as to how I should approach the subject with them, or if I should just let go.
Thanks for your time and cyber ears.

Doug,

I will be able to give you some info on surgery soon. Mine is scheduled for November 27th.

My first Adenoma was invasive.. at the time of surgery, 1978, my prolactin was over 1000.. never new the exact level.
Not all of the tumor cells were extracted due to their location.. around carotid artery & transverse sinus.
Have been on Parlodel since 1978.
As stated, new tumor is not invasive (so far) and is non-secreting.