Prolactinoma Support Group

A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. Prolactin stimulates the breast to produce milk during pregnancy. After delivery of the baby, a mother's...

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AlwasyGeorgeeee 07/11/2016

Hi guys, 21 year old female, normally physically healthy. Diagnosed with 9mm microprolactinoma December 2015, have been taking carbergoline for 6 months at a dose of 0.5mg twice a week. I am having terrible side effects of manic depression, anxiety, and OCD - on top of these symptoms I have lost over 10% of my body weight, being only 52KG that is a lot of weight, I am tired all the time, pale and do not have any energy to do anything. Unfortuantely the doctors don't believe it has anything to do with the cabergoline! I have previously had mental illness but managed to deal with it after the massive withdrawal side effects from SSRI's. I am basically on here because I can't deal with how I feel anymore, has any one else had this issue? My partner is so supportive and I just want to be happy for myself and us. The main reason for me to be on cabergoline was so I could fall pregnant and so the tumor would soon be gone. Please let me know how everyone else is feeling? What you did? Did you have surgery? How did that go?

positiveoutcome 07/11/2016

Hi AGeorge, my side effects were: bipolar depression, anxiety, body pain, weight gain, more fatigue, less energy than the little bit I had, more sleeping problems among others. Have been dealing with PTSD, chronic depression and others before the Cabergoline. I had to stop taking that and after 6 months my body is starting to react. I don't know what to do to stop the prolactin imbalance. The intensivist told me the only solution was the cabergoline, but I cannot stand it. Tried with Vitex but it causes me more depression.

AlwasyGeorgeeee 07/11/2016

Hi Positive Outcome, sounds very similar to how I am feeling though I have lost all my weight and gone down 5 breast cup sizes, have you had the discussion about surgery? I am thinking this is my only option - just don't want to make the mistake of being 1 in a million to not come out of surgery.

positiveoutcome 07/12/2016

Yes, my intensivist said the surgery was recommended too for tumors. I don't know much about this. That is why I am here in this group. I can help myself a little bit because of my lack of energy and depression and others.

BA_SideEffects 07/13/2016

Hi there ag and po - please read through the posts on here thoroughly as many people have had different comments on both cabergoline and surgery. Surgery seems to be a very last resort and not always helpful. There is an alternative drug which you should explore for sure before trying the surgery. Bromocriptine

Thunderbird 09/06/2016

Cabergoline is hard on me too and my endo also doesn't believe the side effects...I have reduced my dose by half and side effects are still present including: headaches, extreme fatigue, dizziness, slurred speech, extreme moods and brain fog. Yours sound worse then mine, I would ask for a review and as per other comment, Bromicriptine is a possible alternative. Good luck, stay strong.

Rosyta 09/19/2016

I just return to Cabergoline after a stop of 3-4 years. Im feeling pain in my low back, in my joints and headaches.

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