Progresive forms of MS Community Group

I want this to be a forum to discuss openly and honestly about the challenges progresive MS poses. This is NOT a place to down play your severity of synptoms or just MS in general. No more advice that isn't appopriate and no more fear. Monsters live in the dark so lets all shed some light.

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deleted_user 05/14/2011

i am positively terrified. i realized that my smptoms and past mri as well as my illness history spell ppms. screw the incompetent docs. i think the man who told me, "come back when you get sicker," was actually trying to give me more time. i know now there is no treatment to slow down the progression. i try to forgive him.

i know people deal, but i do not know how. i hope to find some answers soon. thank you for your support.

deleted_user 05/14/2011

*symptoms

STEVP 05/16/2011

Have you tried Novantron? It seemed to stop the progression, at least for now.

Beemergirl 05/16/2011

Coping is a daily struggle. Different people find different ways but I do believe, it ultimately has to come from within. It is so physically and mentally hard for me to do anything except lay completely still - I often have trouble finding a reason to get out of bed everyday. Mostly, I do it because I don't really want to stay in bed even though it would be easier if I did.....but also, I have a strong faith, I hope for a cure....and mostly, I don't want to be any more of a burden to my family that I already am..........

deleted_user 05/16/2011

I take flaxseed oil supplement b4 bed everynight. help with hydration.
also watch your sugar/candy intake ( which totally sux cuz I hv a sweet tooth n luv chocolate 2)sux the water right outta ya
I had gestational diabetes and I saw a nutritionist that taught me what foods turn n2 sugar wen u digest them(helpful but a pain in the ass I follow the "Gold Coast Cure" diet, don't worry about expensive brand name crapolla if u decide 2 chk it out)
{"Cure" is a stupid word they shouldn't hv used, They shoulda known better I think}
hey those r a few things I do, if tips like this is wat u were lookin 4 just lemme know I got more. lol good luck

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