Progresive forms of MS Community Group
I want this to be a forum to discuss openly and honestly about the challenges progresive MS poses. This is NOT a place to down play your severity of synptoms or just MS in general. No more advice that isn't appopriate and no more fear. Monsters live in the dark so lets all shed some light.
My neuro told me last year that my MS is progressive and there is nothing I can take. 15 years with relapsing/remitting I was taking things to halt the progression yet it didn't matter anyway as MS did what it wanted. So, here I am not being able to walk, my left hand paralized, and my left leg is just there and have to use a power wheelchair. I saw my primary doctor last week and he gave me cortisone shots in both my knees. This has helped me so much as the pain was so bad sometimes that I felt like passing out.
I found this site recently and it has helped me much. Just accepting the fact of what is and others are in the same boat has helped me. I always wondered if my neuro was just brushing me off and I should see other doctors. I don't do well with many kinds of meds so I would have to go through many MIR's,etc. the usually MS stuff only to find out I am worse off. I think I will just stay as I am as am stable so why mess with it - right? I have been eating a lot better - not following any particular diet - but pieces of all of them. I think just accepting what is, is a big step for me.
I found this site recently and it has helped me much. Just accepting the fact of what is and others are in the same boat has helped me. I always wondered if my neuro was just brushing me off and I should see other doctors. I don't do well with many kinds of meds so I would have to go through many MIR's,etc. the usually MS stuff only to find out I am worse off. I think I will just stay as I am as am stable so why mess with it - right? I have been eating a lot better - not following any particular diet - but pieces of all of them. I think just accepting what is, is a big step for me.
deleted_user
I, too, have progressive MS and not on any meds. I use a walker, can't much use my right hand but I stretch and walk a little each day. I also juice veggies and take a powerful vit. for fighting fatigue. I just started taking cannabis chews for pain along with cannabis menthol rub for my leg pain. Another sight you might want to check out is MSCounterpane. Good luck.
RiseAndShineSunshine
I have it too all they give me is baclofen, I wish they would try more... I hope you find a doc who will try harder to help you. I like juicing, it helps me have a little more energy.Hang in there honey, never give up ! Force yourself to keep moving and walk if you can at all, staying moving is the best way to stay alive.
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