Hi love. Yes, my surviving twin was delivered at 25 weeks at 1 pound 6. One of our first NICU nurses gave me a great piece of advice - don't take things day by day. Take them instead hour by hour. That was a beautifully fitting piece of advice! Our boy had the PDA, pulmonary hypertension and haemorrhage, RDS (and still has chronic lung disease) brain bleed, bleeding from bowels and bladder, constant sats/desats, ROP, several episodes of sepsis, As & Bs, cynosis episodes, 9 blood transfusions etc He took a while to be prepped with breastmilk as he developed NEC symptoms every time they tried. He was intubated on the HFOV with nitric oxide and surfactant treatment before he got on the mechanical vent then CPAP. Was a tough ride! He spent 15 weeks there so we are lucky he came home when he was due :) Feel free to message if you want to chat, I remember everything distinctly and it felt really lonely too in that I didn't know anyone else who had had a bub so early x

Wow, some of those are definitely things we are also dealing with. I'm glad your boy is home and ok after all that. My daughters stomach issues have now turned into a perforated intestine for which she had a drain put in yesterday and will be having exploratory surgery tomorrow to hopefully fix the problem. The other 2 are pretty stable even with the issues they do have but this one is just having so many more problems. Thanks for sharing your story, I don't know anyone who had preemies this early so I am glad to see positive outcomes.

Congrats Jamie on your Triplets! I am hoping they all come home healthy and happy soon!

My friend had her twin boys at 24 weeks....one weighing 1lb 8 oz and the other 1 lb 9oz. . The reason the boys came so early was because her water broke with her son Ewan.

Both boys were in the NICU for months....Ewan passed away at 72 days in the NICU from NEC but Liam stayed in the NICU for 102 days and is a perfectly healthy litttle 10 month old now and doing great! You look at him and you never know he was premature!

Hang in there....really hoping all three babies thrive and grow!

Thanks Monica. It's such a rollercoaster, I just want to fast forward the next few months. Mine came because I started having alot of bleeding then all of a sudden I started having back to back contractions and then baby A's water broke.
Congrats again on your little one, he is too cute! Love your profile pic.

I had severe haemorrhaging too (from subchorionic hematomas) resulting in PPROM (at 18 weeks) Also had infection & placental abruption. Very scary thing to go through, and it was so sad to lose one of our babies in the pregnancy. It always makes my heart hurt a little when I hear other mums going through it too.

Our boy is home and happy and along with his big sister and little brother, he is our world :) But he is in several therapies, and still suffers some preemie issues. So it's not exactly smooth sailing yet... he is 18 months old now. Started solids not too long ago which is great :) He still sees a few specialists, has a bunch of specialised testing coming up, and all the therapy. But he is in God's hands, he will be fine. How are your bubbas today? xx

I had the same placenta issues, with the hematomas and abruptions. When they delivered the babies they found an area about 4-5" long and 2' thick on baby a's placenta that was all clots and tears and bleeding. The girls are hanging in there. The never did the surgery, the drain started looking better so they are holding off on it for now. 2 of them are now off the vents and on CPAP so thats good news. Yesterday one of them was put back on the meds for PDA, they said she was showing signs of it affecting her like desaturation and problems with her oxygen and blood pressure so they did an echo and she has a severe pda. Monday they will decide what to do about it if the short course meds haven't worked. Oh they also discontinued her feeds because of it which were going so well. Other than that they are pretty much the same, waiting for repeat head ultrasounds to check on the bleeds and some other things. Thanks for asking :)

Overall that's heading in the positive direction :) I always though of NICU like a graph in math... the overall upward trend is what I focussed on...

Holding off on the surgery sounds promising. My boy had major probs with his PDA too, was still large at discharge but thank the Lord it healed before surgery was booked (we were followed up by the cardiologist. Well, by everyone, still see a few, but no longer cardio!) xx

My son was born at 27 weeks at 1lb 11oz it is a rollercouster ride. But likr ruth86 said take it by the hour and enjor every moment you can with those girls. My son was in the hosiptal for two and half mths. He as chronic lung disease also like ruth86 son as but now he is a happy 7mth old baby boy he is now off oxygen and is doing really great. Enjoy every moment and apperciate all the milestones those girls go through like coming off the vent to cpap first time wearing cloths. Just hang in there and if you need to talk just message me.

I'm a triplet!! 25 weeker, 1 lb 4. I was in the NICU for four months. I'm 15 now, with no lasting damage except a slight hearing loss. I'll be praying for you and your miracle babies. Hang in there, because it does get better. I promise. We had all the breathing, lung, brain, sleep, belly problems. You name it. And you'd never know now.

WOW..So Ruth's story is a mouthful & then some. You have been thru a lot but still kept the faith. Your story is truly an inspiration for those who are losing hope or have simply ran out of faith.

My twins were just about 36 weeks when born with one stillborn. My surviving twin went into a coma 2 weeks after she was born (due to aspiration/lack of oxygen) & has been in a coma now for almost 3 months. She was improving approx. 6 weeks of the incident & her ventilator settings were low, so they tried the CPAP thingy & it seems like I'm back to square one.

The only thing left is for a miracle to take place. I haven't lost hope but the prognosis the doctors gave me is extremely poor. I've decided to refuse any further blood transfusions bcuz I don't want my baby to suffer & deny her the chance of having a good quality of life. I'm at peace with my decision. I hope no one else has to experience what I'm going thru.

my son was 3mths early and was in the hospital for 2 1/2 mths. he was 1lb 11oz. he is now 14mths old. it is a roller coaster ride. he as gi issues and he as chronic lung disease. the advice i can gave is stay strong they need you, and just hang in there.