Welcome katv to this site. I hope that this site will become more active this year

Hello! :)

Glad to see you on this site & hope you will be active.

I'm new to this site. I was recently diagnosed and am fighting my insurance company to get started on Gilenya. Sounds like it may take a while. I've been struggling with these symptoms for the last seven years but none of the Dr's were able to find enough to diagnose me. Then I moved to Phoenix and low and behold, one Dr. did the right MRI and then Spinal Tap and presto! Between those and the Optic Neuritis in my past and the lesion in my Cerebellum, I finally got my diagnosis. But I'm tired, tired of feeling horrible all the time, tired of living in limbo and always waiting for the next step. I think i'm just very discouraged with the whole process to be honest and really wanted to find some people that understood what I was going through. So....Hi!

Hi Maddiea, Welcome to the group.
glad you finally got a dx but sorry you had to go through so much & then got ms. It can be a rotten disease sometimes & other times it will settle.
I hope you get on the Gilenya as I find it very good. It may take a little bit to settle the ms & side effects. ]
There is also groups for those on Gilenya.

Hi Group, I'm new here, not new to MS. If ins doesn't cover gilenya. try needmeds.com or check drug company web site for company assistance for patients.

Thanks for being here guys! I was recently dx with MS. No meds yet. Sure can use all the advice and suggestions from y'all.

Don't be shy about using those patient assistant programs. That's what they are there for. The insurance companies know about them and sometimes drag their feet knowing people will get sick of waiting and search out alternatives. Cut short your wait and use them sooner rather than later. Best of Luck. Lisa

Goodmorning , from an early bird.
GOD 'S ways are higher than our ways (Isaiah 55) GOD Bless you !!!!!!!

Has anyone heard of cerebellar degeneration or spino-cerebellar degeneration ?

"I Can Do All Things Through Christ Who Strengthens Me" Philippians 4:13.

Hello,
I am hoping this group is going to provide me with what I am looking for.

I was officially diagnosed with MS on May 1st. For about a year and a half before that I had gone to several doctors, the latest of which told me I had MS. She didn't really have a good reason for it and she would tell me things like, "hmm...I have never seen this before" or "I don't know what that means". I was really frustrated and I finally went to an MS clinic which confirmed the diagnosis, explained their reasoning, and made a plan for the future. When I got my diagnosis, I had already pretty much come to terms with the fact that I had MS.

I don't let MS define me. It is not who I am, it is just something I have, like brown hair or blue eyes. I don't let it prevent me from doing things. I don't need people to tell me what could happen in the future. I don't need to hear, "well, it is good you can still do that." I understand all the implications of having MS. I know what could happen. I have done the research.

I am looking for a support group that is positive! I have been trying to surround myself with supportive, positive people. I understand the need to vent and there is a time and place for that. I want somewhere I can go to hear positive things people are doing and achieving, even with this diagnosis!

Being positive is easy on the good days. The challenge is to stay that way on the not so good days. That's why we come here looking for support, vent our ugly thoughts, looking for positive heartfelt feedback. The truth is you get what you give. Be positive for others when they need it and they will be positive when you need it. Research is the next tool in the box. Knowing as much as we can and asking for feedback for others experience. Everyone's journey is different and we must all work out our own plan. Support along the way makes it bearable. Good Luck and Happy Tails to All. Lisa

hello.. aussue, you know me.. I am new to this site though. nice to find a positive group!!!

Hi I joined this group as I have had tingling in my body since June 5th. I am 75 years old and have no other symptoms but a doctor I went to for another reason suggested it might be MS. I am asking if anyone in the group had symptoms like this and it was diagnosed MS. I have an appointment with a neurologist August 22.