Polymyositis & Dermatomyositis Support Group

Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.

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Vocal chord paralysis and weak tongue.

Melwally
Melwally
Just had a scope done of my throat because I have been choking on food and my voice has gotten deeper. I was told my left vocal chord was totally paralyzed, my tongue was weak and I had mucous pooling in my throat. Anyone else been told any of this or have these problems??
lexisgirl
lexisgirl
I too am concerned you are tapering Prednisone Brenda and are now having swallowing issues. It is very scary and something to discuss with your doctor sooner than later.

Please do check in with your Myositis doctor.
deleted_user
deleted_user
Melwaly, can you get to the specialists at John Hopkins?? they are truely the best in the USA. Mayo has a group and there are a few others, but JH is the gold standard.
At the TMA conference the specialists said minimum of 2 years of treatment with steroids as tey add another sparing drug. Plaquenil is not in the same category as the other sparing drugs, so be willing to try the others. Many have trouble with plaquenil.

Wishing you all the best, but anty worsening symptoms means they are not treating you aggressively enough.

Shawna N RN and DM patient