Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
Hello everyone....its been awhile since I've been on the board. Trying to heal from my gallbladder surgery. What a mess. I am finally up and around more but still continue to have some soreness which I'm sure will probably last for awhile longer. I still have a massive bruise on my hand from the iv so I can only imagine what my insides must look like.
I'm pretty frustrated as I continue to have a lot of the same pain in the same area triggered by the same things as I did BEFORE the surgery. I saw the surgeon for a follow up 2 days ago and he just kind of shrugged his shoulders at me with a "what can I tell ya" attitude. He thinks there may be more going on. I am scheduled for an endoscopy on Dec. 1. That has been scheduled since early October. I also had a breath test for "H. Pylori bacteria" yesterday that we should get back Monday. I am hoping these two tests may fill in more of the missing pieces to my ever expanding health problem puzzle.
I sure find it strange that all my GI problems seemed to come up literally overnight after 2 weeks on the steroids for my DM. Granted, I did have a few issues with some foods even before my DM diagnosis that I just attributed to my stomach not being able to handle when it was probably by gallbladder back then. The pathology report on my gallbladder said "chronic inflammation".
I'm still not back on any therapeutic meds for my DM. I see my family doctor next Tueday and my rheumy the Monday after Thanksgiving. I sure hope we get some more answers soon. I miss my life. :(
I'm pretty frustrated as I continue to have a lot of the same pain in the same area triggered by the same things as I did BEFORE the surgery. I saw the surgeon for a follow up 2 days ago and he just kind of shrugged his shoulders at me with a "what can I tell ya" attitude. He thinks there may be more going on. I am scheduled for an endoscopy on Dec. 1. That has been scheduled since early October. I also had a breath test for "H. Pylori bacteria" yesterday that we should get back Monday. I am hoping these two tests may fill in more of the missing pieces to my ever expanding health problem puzzle.
I sure find it strange that all my GI problems seemed to come up literally overnight after 2 weeks on the steroids for my DM. Granted, I did have a few issues with some foods even before my DM diagnosis that I just attributed to my stomach not being able to handle when it was probably by gallbladder back then. The pathology report on my gallbladder said "chronic inflammation".
I'm still not back on any therapeutic meds for my DM. I see my family doctor next Tueday and my rheumy the Monday after Thanksgiving. I sure hope we get some more answers soon. I miss my life. :(
Waiting for GYN consult, and Endochrinologist to strengthen bones without all these side effects.
It may be that the swelling and healing is still sending the same messages to the brain, and that in a week or so it will just stop.
I use acupuncture for pain and mood elevation and love it for those things. don't think it could hurt.
They told me today it will take another month for the esophageal burn to heal. It has been 6 weeks since i took the fosamax, so hang in there. Are you using anti-acids?? They seem to be helping me, not the first few days but they work over time.
good luck to you. I am sorry you are still suffering.
Shawna
Angie, the frustration of this illness is immeasurable to many people.
May every day be brighter than the previous, may we all focus on that which matters in our lives.
God Speed for a Speedier recovery.
@Shwana, schedule colonoscopy at the same time, much easier to do, yes the prep sucks....I often wonder when the prep is going to kill me (JK kind of :)
tc
I hate to be a pessimist, but the Gallbladder removal didn't help at all and I was actually sicker following it, in comparison my hysterectomy has stopped the constant digestion issues but not the extreme stomach pain.... I hope that our new tests help, but in my case everything came back normal (but God do I feel far from normal......)
I hope that maybe you feel some relief from your pain, please keep us updated